Search found 3423 matches

by JMan
Tue Dec 15, 2020 9:11 pm
Forum: The KPG Forum
Topic: Hey guys new member Kelly
Replies: 2
Views: 599

Re: Hey guys new member Kelly

Hi Kelly Really sorry no ones replied to your post. Isolation is unfortunately not uncommon. Thankfully there's this site and some excellent charities such as Kidney Care UK to offer support in many ways. https://www.kidneycareuk.org/get-support/ Don't be afraid to give em a call as they offer couns...
by JMan
Sat Nov 14, 2020 1:53 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 22589

Re: Coronavirus

Got both the Gov and LA letter a few days ago. I live in a high peak area but low case 'ward'. Still scary. It suggests registering again https://www.gov.uk/coronavirus-shielding-support To be honest the 'local help' phonically were OK, my partner who has MS got nothing, and the food parcels were en...
by JMan
Sat Nov 14, 2020 11:24 am
Forum: The KPG Forum
Topic: Hope Week - RSN USA
Replies: 0
Views: 303

Hope Week - RSN USA

This may be of interest to some. The Renal Support Network, a US patient led charity hosts Hope Week , ending today. The last webinar is on today https://www.rsnhope.org Even if your not in the USA I've found it interesting. Starts about 6 PM GMT (2PM Pacific) The last session is on Children and Par...
by JMan
Thu Sep 17, 2020 9:28 pm
Forum: The KPG Forum
Topic: Home Dialysis Webinar NKF UK patients
Replies: 0
Views: 518

Home Dialysis Webinar NKF UK patients

Home Dialysis UK Webinar https://zoom.us/webinar/register/WN_aq-syz5ERsKFJiiLGdLZJQ I’ve just booked. National Kidney Federation Webinar: Increasing Home Dialysis in the Context of COVID-19 Wednesday 30th September 5:00 p.m. to 6:30 p.m. The National Kidney Federation (NKF) would like you to join a...
by JMan
Thu Sep 17, 2020 9:23 pm
Forum: The KPG Forum
Topic: Private messages.
Replies: 5
Views: 743

Re: Private messages.

You should be able select a message then you get the options with a dropdown menu

Click on 'Go' then it gives an option to delete the message.

I couldn't find a way to 'select' all.

If your not getting the dropdown menu try a different browser?
by JMan
Sat Jun 13, 2020 6:26 pm
Forum: The KPG Forum
Topic: Hemodialysis - overheating/outofbreath/sickness
Replies: 4
Views: 1585

Re: Hemodialysis - overheating/outofbreath/sickness

Here we go again. Staff not fully informed/trained/or aware of dialysis side effects, can't or don't give an informed answer to patient, or give a 'fob off one'. There are many things that can give similar effects. Is the machine your on set to 'profiling' sometimes called 'sodium profiling' this is...
by JMan
Sun May 03, 2020 8:48 am
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 22589

Re: Coronavirus

Wow what a thread, haven't logged in for a while. Been instructed to self isolate with my partner from March 13th. And did get a letter from my home heamo team, Food parcels coming in, stuff we don't need we give back to the food bank so nothing wasted, and so the circle goes round. Been attaching t...
by JMan
Thu Mar 26, 2020 5:58 pm
Forum: The KPG Forum
Topic: Hospital Transport - Suddenly efficient!
Replies: 1
Views: 1614

Hospital Transport - Suddenly efficient!

A small mixed blessing reported from a friend on heamo in the unit. Now that clinics are cancelled she says she's never been in and out of the unit for dialysis so quickly!
by JMan
Wed Jan 01, 2020 5:43 pm
Forum: The KPG Forum
Topic: Christmas 2019
Replies: 4
Views: 8539

Re: Christmas 2019

A hopeful new year

Christmas this year wasn't;t.. Well very Christmasy.. Black dog hit me on Christmas eve and is still dragging me down.

Euegh...
by JMan
Tue Oct 29, 2019 12:51 pm
Forum: The KPG Forum
Topic: Chester, Liverpool or Manchester Meet Up
Replies: 1
Views: 9678

Re: Chester, Liverpool or Manchester Meet Up

Not local, sadly rather down the road. But I'm sure if you post in the KPA forums and arrange your own meetup you might get more interest.

Good luck..
by JMan
Fri Oct 25, 2019 4:48 pm
Forum: The KPG Forum
Topic: Hi All I am the New one Here
Replies: 8
Views: 12515

Re: Hi All I am the New one Here

Welcome to the group:)
by JMan
Fri Oct 25, 2019 4:46 pm
Forum: The KPG Forum
Topic: Wasted Medications - Needs to change!
Replies: 0
Views: 9037

Wasted Medications - Needs to change!

If you take any form of medications, and have ever thrown some away, taken back to chemist to be destroyed, this is the petition for you. The pharmaceutical industry makes enough profit to come up with a solution. https://www.change.org/p/matthew-hancock-mp-stop-the-waste-of-expensive-prescription-m...
by JMan
Mon Jul 22, 2019 6:12 pm
Forum: The KPG Forum
Topic: New to Home HD
Replies: 3
Views: 11122

Re: New to Home HD

by JMan
Mon Jul 22, 2019 5:38 pm
Forum: The KPG Forum
Topic: Kidney Patient Guide website survey
Replies: 2
Views: 10076

Re: Kidney Patient Guide website survey

Defiantly keep the 'basics' of the first website, even if updated (some support charities have changed name etc). The number of times I've shared the animations to friends, staff, etc I've lost count of. So please please find a way to keep them. We dream for the end of Flash, but while it lasts:) Ev...
by JMan
Sat Jul 06, 2019 6:15 pm
Forum: The KPG Forum
Topic: New to Home HD
Replies: 3
Views: 11122

Re: New to Home HD

Hi There are lots of us not on the list (after 3 transplants, lifelong dialysis is my lifeline). On this forum and many of the other Such as IhateDialysis (USA) Davita (USA) and the many Facebook Groups for charities and other organisations. Theres also HomeDialysis Central and an NXstage users grou...