Search found 355 matches

by sporti
Sun Jun 10, 2018 12:34 am
Forum: The KPG Forum
Topic: Side effects of post txt drugs
Replies: 3
Views: 14974

Re: Side effects of post txt drugs

Hi

I sympathise. I had bad side effects. As they reduce this will help but the body will al so adapt but it can take a long while.
As for the hair there are products out there that can help. Also a topical steroid on prescription is very good.
by sporti
Sun Jun 10, 2018 12:31 am
Forum: The KPG Forum
Topic: Hair loss after transplant
Replies: 6
Views: 25243

Re: Hair loss after transplant

Hi ChrisB
I had major hair loss. It will improve as they taper down the Cellcept and Prograf. However to try and help the situation here in the USA I use Rogaine and I was also given a topical steroid. Really helped.
by sporti
Sun Jun 10, 2018 12:28 am
Forum: The KPG Forum
Topic: Cornell v Columbia - any suggestions?
Replies: 2
Views: 11085

Re: Cornell v Columbia - any suggestions?

Hi

I would advise Mount Sinai in NYC. That where I go. They were wonderful and so helpful. You can look up my old posts I think.
by sporti
Wed Nov 01, 2017 1:53 am
Forum: The KPG Forum
Topic: Post-transplant lymphoma (PTLD) / chemotherapy
Replies: 2
Views: 9569

Re: Post-transplant lymphoma (PTLD) / chemotherapy

Hi Jen I remember you! You may want to read my thread which I started in 2015. To cut a long story short I was diagnosed with kidney disease in my teens. They finally were on their last legs in 2015 at the age of 62. Not bad going. I was put ontransplant list but was taken off (bastards) when I was ...
by sporti
Mon Jul 24, 2017 7:56 pm
Forum: The KPG Forum
Topic: Donor
Replies: 4
Views: 11646

Re: Donor

Hi Matthew

My donor is over 60. Hes a triathlete. Mine was better but he's overtaken me! I'm 0.85
:D
by sporti
Thu Jul 06, 2017 8:40 pm
Forum: The KPG Forum
Topic: Donor
Replies: 4
Views: 11646

Donor

Hi

I just got word that my kidney donor's remaining kidney's function is now exactly the same as when he had two! It was never that far off but now it's exactly the same. Amazing
by sporti
Sun Jun 25, 2017 11:56 pm
Forum: The KPG Forum
Topic: Advograf and Mushroom Extract
Replies: 8
Views: 30758

Re: Advograf and Mushroom Extract

Hi The way I see it there is so little information out there about whether this could be dangerous to your kidney that I just wouldn't do it. Mushrooms are heavy on the potassium and whilst after transplant we can basically eat what we like I still am very careful with potassium. Can I ask did your ...
by sporti
Mon May 15, 2017 12:20 pm
Forum: The KPG Forum
Topic: Transplanted kidney and gout
Replies: 4
Views: 13416

Re: Transplanted kidney and gout

I went to hospital Wagolynn. My kidney results are very good and Uric acid is normal. They don't know why have it except they're wondering whether it's anything to with chiropractor treatment I'm having which releases toxins.
by sporti
Sat May 13, 2017 2:37 pm
Forum: The KPG Forum
Topic: Transplanted kidney and gout
Replies: 4
Views: 13416

Re: Transplanted kidney and gout

I'm in USA. So if I have to do anything now have to go to emergency. Why do these things happen at weekend!
by sporti
Sat May 13, 2017 12:32 pm
Forum: The KPG Forum
Topic: 12th Transplantiversary
Replies: 10
Views: 31927

Re: 12th Transplantiversary

Fantastic to hear! Amazing. Big congrats to you and your wife
by sporti
Sat May 13, 2017 12:28 pm
Forum: The KPG Forum
Topic: Second Anniversary
Replies: 2
Views: 7825

Re: Second Anniversary

Happy Second Anniversary x
by sporti
Sat May 13, 2017 12:27 pm
Forum: The KPG Forum
Topic: Transplanted kidney and gout
Replies: 4
Views: 13416

Transplanted kidney and gout

Hi

Can you believe it on my second anniversary of my transplant (thank you thank you) I get an attack of gout which I still have. Haven't had an attack in ten years. Do I need to report it right now or wait till appointment in June.
Thanks
by sporti
Thu May 04, 2017 2:42 am
Forum: The KPG Forum
Topic: Diarrhea on Tacrolimus
Replies: 7
Views: 18645

Re: Diarrhea on Tacrolimus

Hi Trisha Do you know what his Prograf level is? Is he on Cellcept as well? The runs can make his Prograf level too low. He needs checking out and your GP saying nothing can be done is rubbish. I would get a full blood panel done. I had the same problem they reduced my Cellcept and it stopped. So go...
by sporti
Sat Feb 25, 2017 5:06 pm
Forum: The KPG Forum
Topic: Need advice on dialysis problems for a friend please
Replies: 6
Views: 15066

Re: Need advice on dialysis problems for a friend please

Hi Wafolynn

Thanks for info. He's been on low potassium diet for a while now. He was asked to modify his diet when first diagnosed I believe. Thanks
by sporti
Fri Feb 24, 2017 10:39 pm
Forum: The KPG Forum
Topic: Need advice on dialysis problems for a friend please
Replies: 6
Views: 15066

Re: Need advice on dialysis problems for a friend please

Yes low potassium diet. His potassium is very high