Search found 51 matches

by Marion
Tue Sep 04, 2007 7:25 pm
Forum: The KPG Forum
Topic: Thanks - and update
Replies: 14
Views: 7423

Terrific news!!! :D :D :D :D May you and your kidney (what are you going to name it????) have many happy years together!!

Marion xx
by Marion
Thu Jul 12, 2007 9:31 pm
Forum: The KPG Forum
Topic: Vent - plus advice needed.
Replies: 14
Views: 7497

Hi Mike, A Permacath is what I've been using (aka neckline) but they are not generally used for long term dialysis because of the risk of infection. I'm coming up for a year of use of mine (I miscalculated earlier because of the PD attempt) and they are anxious that I don't use it for too much longe...
by Marion
Thu Jul 12, 2007 8:49 am
Forum: The KPG Forum
Topic: Vent - plus advice needed.
Replies: 14
Views: 7497

Thankyou all, for taking the time to listen and reply. This morning I am feeling just a little better about it all. The HD nurses last night were wonderful and I left there not only dialysed to the eyeballs but with a plan. This morning first thing I rang our lovely renal counsellor (I have refused ...
by Marion
Wed Jul 11, 2007 11:53 am
Forum: The KPG Forum
Topic: Vent - plus advice needed.
Replies: 14
Views: 7497

Vent - plus advice needed.

Hi All Ever since I started dialysis I have had an absolute horror of having a fistula. This has continued despite all my efforts to be reasonable. When I started PD I thought that particular problem was at least out of the way. Then PD failed miserably and I had to go back to HD. Despite everyones ...
by Marion
Fri Jul 06, 2007 9:13 am
Forum: The KPG Forum
Topic: Renal Patient View down in Leeds.... :-(
Replies: 11
Views: 7035

RPV is back up and running in my area (SW Thames) as of last night.:D Hope yours will follow very soon. They've certainly had a few problems - it's been down for more than a week here.

Marion
by Marion
Wed Jun 20, 2007 5:27 pm
Forum: The KPG Forum
Topic: Re joining the CAPD world
Replies: 7
Views: 3371

I used to put my bags in the airing cupboard for a few hours before I needed them! But the hospital did offer me a heater if I wanted one. Then I switchesd to APD so it didn't matter anyway. I used an S hook to hang the bags on. There was another post about this recently and apparently you can get t...
by Marion
Wed Jun 20, 2007 12:13 pm
Forum: The KPG Forum
Topic: RECENTLY ON DIALYSIS
Replies: 3
Views: 2834

Tamazepam works for me for a few weeks at a time. 20 mg. At the moment I am trying Gabapentin as I get virtually no sleep because of RLS. It seems things work for a few weeks and then stop working.So now I rotate drugs and things are fine. When one stops working I use another and then back to the or...
by Marion
Sun Jun 17, 2007 9:04 pm
Forum: The KPG Forum
Topic: cruise liners
Replies: 5
Views: 4730

Try this: http://www.dialysisatsea.com/about.aspx There are a few companies that do cruises with dialysis. Many have to be flown out to and the NHS doesn't cover the dialysis bit so it can be a bit expensive when you add in the treatment. I researched this a few months back so put 'dialysis cruise s...
by Marion
Wed Jun 13, 2007 9:03 am
Forum: The KPG Forum
Topic: Handling Birdcatching Cats post transplant???
Replies: 8
Views: 4498

I am not post-transplant but have been on a lot of immuno-suppressive drugs over the last 2.5 yrs due to cancer and Goodpasture's disease including 2 lots of chemotherapy etc. I have about 8 cats, most of whom are feral but I have 2 'domestic' cats, one of which is an inveterate bird catcher of grea...
by Marion
Sun Jun 10, 2007 5:21 pm
Forum: The KPG Forum
Topic: Do you rule your kidneys or do your kidneys rule you?
Replies: 10
Views: 4734

I have the same attitude as Tom. While I have no intention of doing myself harm by ignoring fluid restrictions / diet altogether I'm a great believer in Quality of Life - if I'm thirsty I'll drink a bit extra and not worry about it. If I fancy a chinese takeaway then I'll have one, albeit rarely! Li...
by Marion
Sun Jun 10, 2007 5:12 pm
Forum: The KPG Forum
Topic: Is there such a thing as too much information?
Replies: 2
Views: 2345

For some people, yes, there is such a thing as too much information. Some people want no information at all. (Strange but true) I need MASSES of information and in depth too. But over a period of time. I think the problem arises mainly if it is given ALL AT ONCE. Given in small dollops with time to ...
by Marion
Fri Jun 08, 2007 9:20 am
Forum: The KPG Forum
Topic: Summer!!
Replies: 20
Views: 8724

I know I haven't been here long but I'd love to come too . :D

Marion.
by Marion
Sun Jun 03, 2007 6:17 pm
Forum: The KPG Forum
Topic: Free Prescription whilst on CAPD
Replies: 8
Views: 3651

Hi Amit, Yes you definitely qualify for free prescriptions. You have a wound (exit site) that requires a permanent dressing on it and that is what qualifies you. Ask your Dr. to fill in the correct form that you then have to sign and send off. They are pretty fast at sending the proper card back to ...
by Marion
Sat Jun 02, 2007 8:42 am
Forum: The KPG Forum
Topic: Happy Transplantiversary Rik
Replies: 25
Views: 13725

Great name for a kidney!!! Congratulations and may you have many more years together! :D

Marion. xx
by Marion
Wed May 30, 2007 8:38 am
Forum: The KPG Forum
Topic: Auto-immune diseases
Replies: 4
Views: 3366

Firstly, welcome to the board. :) There are very friendly and helpful folk on here - I, for one, would be lost without them! You've certainly been through the mill ! I've had advanced cervical cancer (2004) followed by Goodpasture's (2006) and consequent renal failure, am currently on HD having trie...