Kidney Patient Guide

Hi, Lizzie - I know it's hard NOT to worry a lot when the docs start messing with your meds, but especially in the first year post-transplant, there's often quite a bit of fine tuning required... As long as they're closely monitoring your bloods as changes are being made, things should be okay and e...

Hi, all - Before my transplant, I, too, suffered very badly from a hair-trigger gag reflex. In my case, there were 2 different triggers: smells and anything touching my tongue (especially toothbruch and tablets.) I wasted more pills than you can imagine back then! It got to the point that I could on...

Angie, you are a VERY special lady! Hugs to you & to that big lug you call your soulmate (MOG!) Miss you guys!
Love,
Cheryl

Hi, Keith -

Yep, I've been on Cellcept for a while now - exactly 7 years! (That, and tacro & pred...)

all the best,
Cheryl
Connecticut/USA

Hi, trinitybell- In my WORST pre-transplant moments, I likened many of the feelings resulting from renal illness to those of being pregnant... In either case, certain food odors could really set me off! (Even the LOOK of certain foods - for me, raw meat, in particular) could just about do me in. Suf...

Hi, Pam - The worst pain I have ever had in my life came from pred withdrawal! (and I've had 2 kids & have fractured my back - twice!) I think I'm on pred forever, too - I take 5mg a day, even now, 6 1/2 years post transplant. My docs have never tried to wean me off the stuff since the reaction I ha...

Well done, all of you! The site looks cheerful and clean, and it's a breeze to navigate. While I'm not a UK patient myself, I have to say that you've done a great service to many by providing so much basic info & so many contact options for those who use the site. Congratulations on a job well done!...

Hi, Dionne! Tho I rarely post, I check in here just about every day! Please PM me!
lots of love,
Cheryl
CT/USA

Nicky, that's wonderful! (It's about time, too!) Fingers & toes all crossed for you!

Best of luck!
Cheryl
Connecticut/USA

Well, thanks, Rik. Spent the whole holiday giving thanks - well, not really, but a little! As I mentioned to my daughter, perhaps it's the Brits who should be giving thanks that some of us had ancestors who decided to pick up & leave way back when! (My own family was from Salisbury & left on the "2n...

How exciting! Well deserved, too! Congratulations!

all the best,
Cheryl

Hi, Jim - just a quick note to let you know that I'm thinking about you! Just don't let all those doctors & white coats get you down, okay? lots of love, Cheryl p.s. I don't usually suffer the "white coat" effect, but at my last appointment a couple of weeks back, the nurse took my BP and said, "Hmm...

Thanks for the news, Mandy!

Here's wishing Holly a super speedy recovery and many happy years ahead with her new kidney! Kudos to her donor, too!

all the best,
Cheryl

Connecticut/USA

Hi, Keith - I haven't followed up much on the pancreas transplant topic lately, but from what I recall, here in the US, type 1 diabetes is not necessarily a requirement for a pancreas transplant, BUT "high preference" is certainly given to those with type 1. I believe that "just pancreas" transplant...

Jim, I am so sorry you've been so ill! I've been thinking about you lots. I hope the road to recovery will be a fast & easy one for you. Take care of yourself!

love,
Cheryl