Search found 279 matches

by Cheryl in CT
Mon Nov 23, 2009 4:24 am
Forum: The KPG Forum
Topic: Myfortic, Prograf and Pred.
Replies: 5
Views: 3678

Hi, Lizzie - I know it's hard NOT to worry a lot when the docs start messing with your meds, but especially in the first year post-transplant, there's often quite a bit of fine tuning required... As long as they're closely monitoring your bloods as changes are being made, things should be okay and e...
by Cheryl in CT
Mon Nov 23, 2009 3:40 am
Forum: The KPG Forum
Topic: any ideas on how to prevent gagging when cleaning teeth?
Replies: 8
Views: 6957

Hi, all - Before my transplant, I, too, suffered very badly from a hair-trigger gag reflex. In my case, there were 2 different triggers: smells and anything touching my tongue (especially toothbruch and tablets.) I wasted more pills than you can imagine back then! It got to the point that I could on...
by Cheryl in CT
Mon Nov 23, 2009 3:16 am
Forum: The KPG Forum
Topic: Dating a kidney patient
Replies: 23
Views: 27277

Angie, you are a VERY special lady! Hugs to you & to that big lug you call your soulmate (MOG!) Miss you guys!
Love,
Cheryl
by Cheryl in CT
Fri Oct 30, 2009 6:57 am
Forum: The KPG Forum
Topic: Cellcept (mmf)
Replies: 6
Views: 3886

Hi, Keith -

Yep, I've been on Cellcept for a while now - exactly 7 years! (That, and tacro & pred...)

all the best,
Cheryl
Connecticut/USA
by Cheryl in CT
Tue Oct 20, 2009 12:29 pm
Forum: The KPG Forum
Topic: Supermarket causing nausea
Replies: 5
Views: 2233

Hi, trinitybell- In my WORST pre-transplant moments, I likened many of the feelings resulting from renal illness to those of being pregnant... In either case, certain food odors could really set me off! (Even the LOOK of certain foods - for me, raw meat, in particular) could just about do me in. Suf...
by Cheryl in CT
Tue Jun 16, 2009 9:47 pm
Forum: The KPG Forum
Topic: Sentenced to prednisone.....forever!
Replies: 15
Views: 5647

Hi, Pam - The worst pain I have ever had in my life came from pred withdrawal! (and I've had 2 kids & have fractured my back - twice!) I think I'm on pred forever, too - I take 5mg a day, even now, 6 1/2 years post transplant. My docs have never tried to wean me off the stuff since the reaction I ha...
by Cheryl in CT
Thu Jun 11, 2009 8:09 am
Forum: The KPG Forum
Topic: New look Kidney Patient Guide site
Replies: 7
Views: 3131

Well done, all of you! The site looks cheerful and clean, and it's a breeze to navigate. While I'm not a UK patient myself, I have to say that you've done a great service to many by providing so much basic info & so many contact options for those who use the site. Congratulations on a job well done!...
by Cheryl in CT
Mon May 04, 2009 8:47 am
Forum: The KPG Forum
Topic: Attn All Oldies: Then and Now...
Replies: 30
Views: 11862

Hi, Dionne! Tho I rarely post, I check in here just about every day! Please PM me!
lots of love,
Cheryl
CT/USA
by Cheryl in CT
Mon Dec 01, 2008 2:23 am
Forum: The KPG Forum
Topic: Living unrelated transplant coming up - Tuesday 2nd Dec
Replies: 23
Views: 7590

Nicky, that's wonderful! (It's about time, too!) Fingers & toes all crossed for you!

Best of luck!
Cheryl
Connecticut/USA
by Cheryl in CT
Sat Nov 29, 2008 8:58 am
Forum: The KPG Forum
Topic: Happy Thanksgiving :0)
Replies: 3
Views: 2081

Well, thanks, Rik. Spent the whole holiday giving thanks - well, not really, but a little! As I mentioned to my daughter, perhaps it's the Brits who should be giving thanks that some of us had ancestors who decided to pick up & leave way back when! (My own family was from Salisbury & left on the "2n...
by Cheryl in CT
Wed Nov 26, 2008 5:46 pm
Forum: The KPG Forum
Topic: KPG up for award
Replies: 10
Views: 5457

How exciting! Well deserved, too! Congratulations!

all the best,
Cheryl
by Cheryl in CT
Fri Oct 24, 2008 10:07 am
Forum: The KPG Forum
Topic: Further update- Results
Replies: 2
Views: 1894

Hi, Jim - just a quick note to let you know that I'm thinking about you! Just don't let all those doctors & white coats get you down, okay? lots of love, Cheryl p.s. I don't usually suffer the "white coat" effect, but at my last appointment a couple of weeks back, the nurse took my BP and said, "Hmm...
by Cheryl in CT
Wed Oct 22, 2008 6:56 am
Forum: The KPG Forum
Topic: transplant newbie
Replies: 21
Views: 9194

Thanks for the news, Mandy!

Here's wishing Holly a super speedy recovery and many happy years ahead with her new kidney! Kudos to her donor, too!

all the best,
Cheryl

Connecticut/USA
by Cheryl in CT
Wed Oct 22, 2008 6:50 am
Forum: The KPG Forum
Topic: post transplant diabetes
Replies: 15
Views: 8233

Hi, Keith - I haven't followed up much on the pancreas transplant topic lately, but from what I recall, here in the US, type 1 diabetes is not necessarily a requirement for a pancreas transplant, BUT "high preference" is certainly given to those with type 1. I believe that "just pancreas" transplant...
by Cheryl in CT
Sun Oct 12, 2008 11:22 am
Forum: The KPG Forum
Topic: 2 weeks in hospital
Replies: 7
Views: 3277

Jim, I am so sorry you've been so ill! I've been thinking about you lots. I hope the road to recovery will be a fast & easy one for you. Take care of yourself!

love,
Cheryl