Support groups

The following support groups may be of use to UK-based patients and their families.
Click on the name of a group in the list below for more details...

Names and contact details

Groups and organisations that offer services and support to kidney patients

Age Concern England

Provides care, opportunities and advice for all older people throughout the UK

Age Concern England
Astral House,
1268 London Road,
London SW16 4ER

Tel: 020 8765 7200
Fax: 020 8765 7211
Website: http://www.ageuk.org.uk/

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Association of Disabled Professionals

Offers advice, information and peer support, primarily in the area of employment rights for disabled people.

Association of Disabled Professionals
BCM ADP
London
WC1N 3XX1

Tel/Fax: 01204 431638
E-Mail: adp.admin@ntlworld.com
Website: http://www.adp.org.uk/

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Blood Transfusion: Information for Patients

This website provides evidence-based information about blood transfusion and is approved by the National Blood Transfusion Committee and NHS Blood and Transport. If provides resources in multiple languages about blood transfusion as well as information about alternatives to blood transfusion.

NHS Blood and Transplant
Customer Services
Colindale Avenue
Colindale
London
NW9 5BG

Tel: 0300 123 23 23
Website: http://www.blood.co.uk/about-blood/information-for-patients/

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British Diabetic Association

Offers information, support and advice on all aspects of Diabetes for people with diabetes, their relatives, friends and carers.

Macleod House,
10 Parkway
London
NW1 7AA

Tel: 020 7424 1000
Fax: 020 7424 1001
E-Mail: info@diabetes.org.uk
Website: http://www.diabetes.org.uk/

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British Kidney Patient Association

Provides support and advice to kidney patients and their families including financial assistance and help with getting a holiday.

British Kidney Patient Association ( BKPA )
3 The Windmills
St Mary's Close
Turk Street
Alton
GU34 1EF

Tel: 01420 541424
Fax: 01420 89438
Website: http://www.britishkidney-pa.co.uk

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Carers Direct

Carers Direct is a national information, advice and support service for carers in England. Available online at www.nhs.uk/carersdirect and as a free, confidential helpline seven days a week on 0808 802 0202, it provides accurate, relevant information for carers and those who support them.

Lines are open seven days a week, from 8am to 8pm on weekdays and 10am until 4pm on weekends and Bank Holidays. All calls, including mobiles, are free.

Tel: 08088 020202
Website: http://www.nhs.uk/carersdirect/

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Carers National Association

Provides carers with information and advice on all aspects of caring.

20-25 Glasshouse Yard
London EC1A 4JT

Tel: 020 7490 8818
Fax: 020 7490 8824
E-Mail: info@carersuk.org
Website: http://www.carersuk.org/

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CLIMB - Children Living with Metabolic Diseases

Climb Building,
176 Nantwich Road
Crewe, CW2 6BG.

Tel: 0845 241 2173
E-Mail: info.svcs@climb.org.uk
Website: http://www.climb.org.uk/

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Contact A Family

A national charity providing support and advice to families who care for children with disabilities.

209-211 City Road
London EC1V 1JN

Tel: 0808 808 3555 Freephone Helpline (10-4 Mon-Fri)
Tel: 020 7608 8700
Fax: 020 7608 8701
E-Mail: info@cafamily.org.uk
Website: http://www.cafamily.org.uk/

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Department of Health

Richmond House
79 Whitehall
London SW1A 2NS

Tel: 020 7210 4850
Website: https://www.gov.uk/government/organisations/department-of-health

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Department for Work and Pensions

Find your local Disability Benefit Centre.

Website: https://www.gov.uk/government/organisations/office-for-disability-issues

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Disability Wales/Anabledd Cymru

Provides independent advice, support and training for disabled people; develops and supports disability groups and networks in the region; and provides training and advice to employers, service providers and policy makers throughout Wales.

Ty'r Binwydden
Clayton Road
Mold
Flintshire
CH7 1ST

Tel: 01352 751112
Fax: 029 2088 8702 (Head Office)
E-Mail: info@disabilitywales.org
Website: www.disabilitywales.org

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Family Fund

An independent organisation which provides grants and information to families caring for disabled children under the age of sixteen.

Family Fund
Unit 4, Alpha Court
Monks Cross Drive
Huntington
York
YO32 9WN

Tel: 0845 130 4542
Minicom: 01904 658085
E-Mail: info@familyfund.org.uk

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Family Holiday Association

Makes grants available to provide one week's holiday for families on low income or benefits.

2nd Floor Rear
16 Mortimer Street
London W1M 3JL

Tel: 020 7436 3304
Fax: 020 7436 3302
E-Mail: info@familyholidayassociation.org.uk

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Holiday Care Service

The UK's leading source of holiday and travel information for disabled people and their carers.

Tourism for All
The Hawkins Suite
Enham Place
Enham Alamein
Andover SP11 6JS

Tel: 0845 124 9971
Fax: 0845 124 9972
E-Mail: info@tourismforall.org.uk

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Irish Kidney Association

Provides information and practical assistance to kidney patients, and funding for practical research projects etc.

Irish Kidney Association
Donor House
Block 43A
Parkwest
Dublin 12

Tel: 1890-456556
E-Mail: info@ika.ie
Website: http://www.ika.ie/

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The MedicAlert Foundation

The emergency identification system for people with special medical conditions.

The MedicAlert Foundation
MedicAlert House
327-329 Witan Court
Upper 4th Street
Milton Keynes
MK9 1EH
United Kingdom

Tel: 020 7833 3034
Fax: 020 7713 5653
E-Mail: info@medicalert.org.uk
Website: https://www.medicalert.org.uk/

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Kidney Research UK

Provides funding for research into renal disease and also awards grants to patients.

Kidney Research UK
Nene Hall
Lynch wood Park
Peterborough
PE2 6FZ

Tel: 0845 300 1499
Fax: 08456 047211
E-Mail: kidneyhealth@kidneyresearchuk.org
Website: http://www.kidneyresearchuk.org

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National Kidney Federation

Provides its members with information, advice and practical support, alongside campaigning for better facilities for people suffering from kidney disease.

National Kidney Federation,
The Point,
Coach Road, Shireoaks,
Worksop
Nottinghamshire S81 8BW

Tel: 01909 544999
Fax: 01909 481723
E-Mail: nkf@kidney.org.uk
Website: http://www.kidney.org.uk

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Nutritionalist Resource

The purpose of this site is ultimately to provide the UK with a huge nutrition support network, enabling those in need to find a nutritionist close to them and appropriate for their needs. This is a free, confidential service that will provide those seeking support with all the information they need. Every nutritionist on the site who has submitted their profile has either sent a copy of their qualifications and insurance cover to us, or is registered with a professional body with recognised codes of ethics and practice, this way we can be assured of their professionalism.

Nutritionist Resource,
Coliseum,
Riverside Way, Camberley,
Worksop
Surrey GU15 3YL

Tel: 01909 544999
Fax: 01909 481723

Website: http://www.nutritionist-resource.org.uk

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Oak Tree Lane Centre

To talk privately and confidentially about your experiences and feelings in a way that is rarely possible with family and friends. It can be helpful to anyone - patients, relatives and carers, individuals, couples, or family groups. Access to Communication and Technology: Is a service which deals with alternative methods of communicating and with different ways of using electronic equipment for people with physical disabilities

Oak Tree Lane Centre
Oak Tree Lane
Selly Oak
Birmingham B29 6JA

Tel: 0121 627 8235
Fax: 0121 627 8210

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Shaw Trust

Offers a range of work-related services to meet the needs of disabled people, such as Supported Placements, Training for Work and new deal.

Shaw Trust Head Office
Fox Talbot House,
Greenways Business Park,
Malmesbury Road,
Chippenham,
Wiltshire,
SN15 1BN

Tel: 01225 716300
Fax: 01225 716301
Minicom: 08457 697288
E-Mail: stir@shaw-trust.org.uk
Website: http://www.shaw-trust.org.uk/

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Stairlifts Reviews

The Stairlifts Reviews website has some useful information on sources of support for carers. It provides contact details for arranging needs assessments and carer’s assessments in your local area.

49 Station Road
Polegate
East Sussex
BN26 6EA

Tel: 0800 0248065
E-Mail: info@stairliftsreviews.co.uk
Website: http://www.stairliftsreviews.co.uk/carers/

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Swindon Kidney Patients' Association

The Swindon Kidney Patients' Association (SKPA) offers support for dialysis and renal transplant patients, living in the Swindon area. The SKPA is a branch of the Six Counties Kidney Patients Association (SCKPA), which supports all patients covered by the Kidney Unit and Transplant Centre at the Churchill Hospital, Oxford.

Kidney Patients Association
5 Blakeney Avenue
Swindon
SN3 3NE

Tel: 01793 527727

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Therapy Directory

They promote the benefits of complementary therapy and aim to give visitors all the information they need to help them make an informed decision about whether therapy would be right for them. The website has an FAQ's section, a number of useful articles written by our members and the facility to search for a practitioner in your area.

Therapy Directory,
Coliseum
Riverside Way,
Camberley Surrey,
GU15 3YL

Tel: 0844 8030 245
Website: http://www.therapy-directory.org.uk

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Hypnotherapy Directory

Hypnotherapy utilises the power of positive suggestion to bring about subconscious change to our thoughts, feelings and behaviour. The site offers information about how hypnotherapy can help, their upcoming events, articles written by professionals and the latest hypnotherapy news. Hypnotherapy can aid those who suffer from anxiety, depression and stress.

Hypnotherapy Directory,
Coliseum
Riverside Way,
Camberley Surrey,
GU15 3YL

Tel: 0844 8030 242
Website: http://www.hypnotherapy-directory.org.uk/

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Psychonephrology.com

Psychonephrology.com is an online community of nephrologists, mental health clinicians, social workers, patients and caregivers. We are committed to understanding and helping patients cope with the psychosocial impact of chronic kidney disease. Our focus is also on helping families and clinicians who are also profoundly impacted during their ceaseless support of these patients.

E-Mail: admin@psychonephrology.com
Website: http://psychonephrology.com/

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