The following support groups may be of use to UK-based patients and their families.
Click on the name of a group in the list below for more details...
Names and contact detailsGroups and organisations that offer services and support to kidney patients Age Concern EnglandProvides care, opportunities and advice for all older people throughout the UK Age Concern EnglandAstral House 1268 London Road London SW16 4ER Tel: 020 8765 7200 Fax: 020 8765 7211 Web: www.ageconcern.org.uk Association of Disabled Professionals Offers advice, information and peer support, primarily in the area of employment rights for disabled people. Association of Disabled Professionals British Diabetic Association Offers information, support and advice on all aspects of Diabetes for people with diabetes, their relatives, friends and carers. Macleod House,10 Parkway London NW1 7AA Tel: 020 7424 1000 Fax: 020 7424 1001 email: info@diabetes.org.uk Web: www.diabetes.org.uk British Kidney Patient Association Provides support and advice to kidney patients and their families including financial assistance and help with getting a holiday. BordonHampshire GU35 9JZ Tel: 01420 472021/2 Fax: 01420 475831 Web: www.britishkidney-pa.co.uk Carers National Association Provides carers with information and advice on all aspects of caring. 20-25 Glasshouse YardLondon EC1A 4JT Tel: 020 7490 8818 Fax: 020 7490 8824 Web: www.carersuk.org e-mail: info@carersuk.org CLIMB - Children Living with Metabolic Diseases Climb Building, 176 Nantwich Road Crewe, CW2 6BG. Tel: 0845 241 2173 Web: www.climb.org.uk email: info.svcs@climb.org.uk Contact A Family A national charity providing support and advice to families who care for children with disabilities 209-211 City RoadLondon EC1V 1JN Tel: 0808 808 3555 Freephone Helpline (10-4 Mon-Fri) Tel: 020 7608 8700 Fax: 020 7608 8701 e-mail: info@cafamily.org.uk Web: www.cafamily.org.uk Department of Health Richmond House 79 Whitehall London SW1A 2NS Tel: 020 7210 4850 Web: www.dh.gov.uk/Home/fs/en Department for Work and Pensions Find your local Disability Benefit Centre. Web: www.dwp.gov.uk/localoffice/disability/index.aspDisability Wales/Anabledd Cymru Provides independent advice, support and training for disabled people; develops and supports disability groups and networks in the region; and provides training and advice to employers, service providers and policy makers throughout Wales. Ty'r BinwyddenClayton Road Mold Flintshire CH7 1ST Tel: 01352 751112 Fax: 029 2088 8702 (Head Office) Web: www.disabilitywales.org email: info@disabilitywales.org Family Fund An independent organisation which provides grants and information to families caring for disabled children under the age of sixteen. Family FundUnit 4, Alpha Court Monks Cross Drive Huntington York YO32 9WN Tel: 0845 130 4542 Tel: 01904 658085 (Minicom) email: info@familyfund.org.uk Family Holiday Association Makes grants available to provide one week's holiday for families on low income or benefits. 2nd Floor Rear16 Mortimer Street London W1M 3JL Tel: 020 7436 3304 Fax: 020 7436 3302 email: info@familyholidayassociation.org.uk Holiday Care Service The UK's leading source of holiday and travel information for disabled people and their carers. Tourism for AllThe Hawkins Suite Enham Place Enham Alamein Andover SP11 6JS Tel: 0845 124 9971 Fax: 0845 124 9972 email: info@tourismforall.org.uk Irish Kidney Association Provides information and practical assistance to kidney patients, and funding for practical research projects etc. Irish Kidney AssociationDonor House Block 43A Parkwest Dublin 12 Tel: 1890-456556 Web: www.ika.ie email: info@ika.ie Medic-alert Foundation The emergency identification system for people with special medical conditions. National Kidney Federation Provides its members with information, advice and practical support, alongside campaigning for better facilities for people suffering from kidney disease. 6 Stanley StreetWorksop Notts S81 7HX Tel: 01909 487795 Fax: 01909 481723 e-mail: nkf@kidney.org.uk Web: http://www.kidney.org.uk Shaw Trust Offers a range of work-related services to meet the needs of disabled people, such as Supported Placements, Training for Work and new deal. Shaw Trust Head Office Skill (National Bureau for Students with Disabilities) Provides support and advice to disabled students, and promotes good practice within education, training and employment. 4th Floor, Chapter House18-20 Crucifix Lane London SE1 3JW Tel: 0800 328 5050 (helpline) Fax: 020 7450 0650 Web: www.skill.org.uk email: skill@skill.org.uk Swindon Kidney Patients' Association The Swindon Kidney Patients' Association (SKPA) offers support for dialysis and renal transplant patients, living in the Swindon area. The SKPA is a branch of the Six Counties Kidney Patients Association (SCKPA), which supports all patients covered by the Kidney Unit and Transplant Centre at the Churchill Hospital, Oxford. 5 Blakeney AvenueNythe Swindon Wiltshire Tel: (01793) 527727 Web: www.skpa.org.uk email: kidneysec.swindon@btinternet.com The National Kidney Research Fund Provides funding for research into renal disease and also awards grants to patients. Kings ChambersPriestgate Peterborough PE1 1FG Tel: 01733 704650 Fax: 01733 704699 e-mail: enquiries@nkrf.org.uk Web: www.nkrf.org.uk Oak Tree Lane Centre To talk privately and confidentially about your experiences and feelings in a way that is rarely possible with family and friends. It can be helpful to anyone - patients, relatives and carers, individuals, couples, or family groups. Access to Communication and Technology: Is a service which deals with alternative methods of communicating and with different ways of using electronic equipment for people with physical disabilities. Oak Tree Lane Centre Oak Tree Lane Selly Oak Birmingham B29 6JA Tel: 0121 627 8235 Fax: 0121 627 8210 |