We had already lived through more than 5 years of another serious family illness and frankly the last 12 months have seen me close to a breakdown. I would gladly take on all their pain and illness but feel helpless and find life so unfair for them. To see them at the start of their lives and know that their health can only get worse is a living nightmare with no possibility of awakening. I am in tears now


The help, support and knowledge found here have also helped me a great deal, and the knowledge that others are worse off than we are yet still cheerful and strong; Robin and Abby are relatively well and living normally at the moment, long may it continue.
Thanks Folks BrendaM in UK