How long have you had your transplant?

This is the forum for the Kidney Patient Guide. We welcome feedback about the site and any information that may be of use or interest to other visitors.

IMPORTANT NOTE: This forum is not for queries that would otherwise be addressed to a doctor. If you have a question about your condition or treatment please consult your renal unit or doctor. We do not have any editorial or medical resources to answer individual queries.

Moderator: administrator

How long have you had your transplant?

Postby SKM23435 » Mon Jan 22, 2018 5:23 pm

I have had my transplant 2 1/2 years. It has been brilliant allowing me to get on with life and even on occasions forget I am a renal patient. I was talking to a fellow transplantee the other day. She said “I’ve had my kidney for 12 years, I expect it to last for another 8 years. So if I want to do anything I need to do it in the next 8 years”. She was planning holidays and things she wanted to do.

It was quite a thought put like that. I’d never really thought like that. Should I be writing my lifespan of the kidney bucket list? Should I be retiring quickly to go and do things?? Do other people feel like this? That feeling of time running out?

I thought maybe seeing that Chris in a previous post had said he has had his transplant for 36 years maybe a more positive way any looking at things was to ask some of our forumites how long they have had their transplants?

Sue
Started APD July 2014
On transplant and paired exchange lists.
Transplant 9/5/15
SKM23435
 
Posts: 287
Joined: Wed Oct 16, 2013 2:39 pm

Re: How long have you had your transplant?

Postby suz » Wed Jan 24, 2018 4:58 am

Hi Sue
In a few weeks time I will have had my transplant for 4 years and am grateful to my deceased donor and their family every day.

I don't think there is any way of accurately predicting how long a transplant will last and it depends on so many factors. Taking good care of yourself, taking your meds, drinking plenty of water, eating a healthy diet, avoiding people who are unwell when you can are some things that you have control over but there are many factors outside our control. I feel grateful for each day and try to make the most of it. I chose to take early retirement and have no regrets about doing so.

Having lost a relative and a friend (neither had a renal condition and both previously in good health ) suddenly a few days before Christmas, just enforces for me how fragile life can be, no one knows how long they have and should make the most of each day and try not to worry how many days we may or may not have left.

Regards Suz
suz
 
Posts: 57
Joined: Fri Apr 10, 2009 7:33 am
Location: Australia

Re: How long have you had your transplant?

Postby AmandaClare » Fri Jan 26, 2018 7:17 am

Hi Sue

The bucket list idea is interesting.

Younger people probably should plan families and careers to take advantage of the transplant, or whatever big life goals are important to them.

I've been extremely lucky. My transplant is coming up for its 30th anniversary and it's just background for me most of the time. I'd say I value not having to think like a sick person and just get on with life. Though I hope I don't ignore reality. My vague 'life plan' from now includes stepping back from work quite early, for example.

Each to their own though - I hope your friend has a fantastic few years.

Amanda
Alports Syndrome
Dialysis 1986, aged 14
Transplant 1988, still going strong!
Baby boy 2010
AmandaClare
 
Posts: 649
Joined: Tue Sep 18, 2007 1:58 pm
Location: London

Re: How long have you had your transplant?

Postby Chris Wright » Fri Jan 26, 2018 8:36 am

Sue,

Too much thinking about it will cause worry and fret.

Live each day usefully, and purposely, and enjoy.

All a bit Bhuddist, i know!!! :D

Chris
Transplanted Sept 1981

Still enjoying life like a 21 year old, or younger!
Chris Wright
 
Posts: 107
Joined: Sun Nov 19, 2006 9:21 pm

Re: How long have you had your transplant?

Postby rheaybou » Sat Jan 27, 2018 10:34 am

Feb 18th will be 5 years.

In the begining I just wanted to make a year, then two and so on. Now i have no expectations on how long this amazing journey will last. I try to stay healthy and fit, but most importantly spend time with my partner and our amazing daughter (born post TX)

A list of goals or places to travel sounds like a good idea, but I have half a life to live still.....plenty of time
Now 35 with Alports and I had my first kidney-versary 18th feb 2013....I hope to have many more.

My living donor and his family are doing all well.

==
34 year old with Alports.

Living donor transplant take two 18/02/2013.....
rheaybou
 
Posts: 1361
Joined: Mon Nov 14, 2011 11:04 am
Location: Doncaster


Return to The KPG Forum

Who is online

Users browsing this forum: Google [Bot] and 27 guests