by Mike2003 » Sat Oct 07, 2017 12:22 pm
For me it's been an unexpectedly long game with renal disease. I think I underestimated the importance of mental strength and illness ownership. Just being told I was stage 5 renal failure made me feel more unwell. I was 18%eGFR then in 2006...2017 now and I'm at 11%eGFR. It's like an internal negotiation between me, my body, hope and some faith.
Currently I have a sympathetic, kind employer and I can't begin to say how my self image has shifted for the better. I am able to try and do workouts most days even battling with the additional problem of osteoarthritis.
Realistic and caring supporters are important. I don't think my worried Mum realised how she clipped my wings as a child and I was only diagnosed then, not on dialysis or late stage at that time.
Sheer stubborness sometimes keeps me going, particularly when I've been bullied!
I guess its similar after surgery, the same applies. Hopefully folk dont get bullied post surgery but Ive seen it in call centre jobs Ive been in. I hope Ill get a permanent status job where I am. Intelligent support is important.
eliznew412.
Aged 62 lady stage 5 renal failure awaiting transplant