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JMan wrote:you should've started LOL.. Now I get to be the first..darn, Steve beat me too it.. OK the 2nd
Name: JMan
Place: somewhere in london, England, Planet Earth, The Universe.
Weather: Sunny
Music: None at tthe moment but I can hear a grass roller squeaking and a hound barking above the sweet whirr of my mac:)
Mood: Pretty chilled.
Age: somewhere approaching 30
Kidneystuff: Original diagnosis ESRF in association with megacystic megaureter syndrome (malformed bladder & ureters) at about 5 years old.
Third renal transplant, in Jan 2001. Prev haemodialysis (9 years), treated for cancer, brief spell on PD.. and lots of other stuff like parathyroidectomy, etc etc Kidney patient for 20++ years or there abouts
Need/want to know more.. PM me or send an email![]()
Cheers
wagolynn wrote:Hi Steve1960,
I find this website very reliable, look under Handbook, http://www.edren.org/pages/handbooks/un ... alysis.php
The home page to this website leads off to a lot of useful information. http://www.kidneypatientguide.org.uk/contents.php
After looking at these, if you have any questions post on the forum, I am sure you will get some sensible responses.
Best wishes.
ras2701 wrote:Hello everyone
I am Rob, 44, from Staffordshire, England.
Had my left kidney removed at the age of 3 due to it being badly diseased (don't think I was ever told exactly the cause).
Had lots of on going problems with my remaining kidney with constant infections etc.
Finally had a stent fitted when I was 37 due to an unknown blockage between bladder and kidney.
I have the stent replaced every six months.
GFR anything from 18-32 depending on state of kidney.
Creatinine anything from 125 - 292.
My stent is constantly colonising with bacteria and causing infections.
Antibiotics are becoming resistant to these infections.
Looking for advice and maybe support
Really starting to worry now
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