Very frequent urination after tx

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Very frequent urination after tx

Postby Trisha » Sat Dec 10, 2016 6:16 am

My husband had a transplant on 13th November and the doctors say the kidney is working very well, however he has to keep getting up all night long to urinate. He's been assured that this is normal but having to get up every half hour seems excessive to me. Did this happen to anyone else and if so did it get any better? We're both exhausted.
Trisha
 
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Re: Very frequent urination after tx

Postby Lynda Rose » Sat Dec 10, 2016 4:15 pm

I read about people who pee 2,3 liters in one single sitting
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Re: Very frequent urination after tx

Postby Tibbs » Sat Dec 10, 2016 4:17 pm

I had this - I was up 5 times in a night for the first month or so. It does get better, I think it was back to normal a few months down the line.
26/11/12 - Live donor transplant from my dad
6/1/13 - Discharged - Rejection episode over
7/1/13 - Getting on with life
24/9/13 - Left Radical Nephrectomy of Native Kidney due to cancerous tumour
14/10/13 - Back to work, getting on with life
Tibbs
 
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Re: Very frequent urination after tx

Postby wagolynn » Sat Dec 10, 2016 6:03 pm

If this not getting better, he can get help to retrain his bladder, ask the GP or transplant team.
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Re: Very frequent urination after tx

Postby Trisha » Sat Dec 10, 2016 9:15 pm

The transplant team have said it's normal but if it goes on he will have to insist on getting some help. He doesn't always pass anything but feels he wants to go all the time. Perhaps he's still feeling theffects of the stent removal.
Trisha
 
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Re: Very frequent urination after tx

Postby Tibbs » Mon Dec 12, 2016 12:32 am

Trisha wrote:The transplant team have said it's normal but if it goes on he will have to insist on getting some help. He doesn't always pass anything but feels he wants to go all the time. Perhaps he's still feeling theffects of the stent removal.


Yup, had the peeing fresh air thing after stent removal too. It went away for me.
26/11/12 - Live donor transplant from my dad
6/1/13 - Discharged - Rejection episode over
7/1/13 - Getting on with life
24/9/13 - Left Radical Nephrectomy of Native Kidney due to cancerous tumour
14/10/13 - Back to work, getting on with life
Tibbs
 
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Re: Very frequent urination after tx

Postby rheaybou » Mon Dec 12, 2016 11:08 am

I could go from not needing to pee to having to go in about 1 second.

While not urinating on dialysis you are warned that the bladder shrinks, I would have urges to pee all the time when on dialysis and not be able to squeeze out a drop. Stent removal can increase the need to pee for a day or so because of the muscle needed to pass the scope down is stretched.

Would guess that the longer the time on dialysis then the longer it takes the bladder to get back to its normal size.
Now 35 with Alports and I had my first kidney-versary 18th feb 2013....I hope to have many more.

My living donor and his family are doing all well.

==
Alports.
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Re: Very frequent urination after tx

Postby Trisha » Mon Dec 12, 2016 4:11 pm

The stent was removed a couple of weeks ago. My husband went to the transplant clinic today and all they could say is that it might get better. I hope so. At the moment its more restricting than dialysis as he can't go far from a toilet.
Trisha
 
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Re: Very frequent urination after tx

Postby wagolynn » Mon Dec 12, 2016 4:36 pm

Your GP is the one who may arrange some bladder training for him.
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Re: Very frequent urination after tx

Postby Zennor » Fri Dec 16, 2016 12:07 pm

Hi,

Just seen this. By the time I got a TX my bladder must have shrunk to the size of a walnut. Not only a very small capacity, but with no give. My recollection is that it took several months to get to any sort of normality. Apart from maybe a prostate check (which I am guessing would have been part of the stenting process) I think it will be a matter of a bit more time.

Good luck
Zennor
 
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Re: Very frequent urination after tx

Postby Trisha » Fri Dec 16, 2016 12:24 pm

Yes, they have said at the hospital that his bladder has shrunk and needs to stretch. Hopefully this will improve as time goes on. We have another worry now in that the latest blood test showed a drop in kidney function and they may want to do a biopsy.
Trisha
 
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Re: Very frequent urination after tx

Postby AllenC » Mon Dec 19, 2016 1:55 am

Hello.
New member just joined although I've been reading the posts for a while now.
Currently have kidney function of 15% and seeing the surgeon next week to discuss having a fistula in place ready for dialysis.
I will probably have lots of questions to ask as things progress.

Anyway...reading this thread, I'm wondering what is the stent mentioned?
AllenC
 
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Re: Very frequent urination after tx

Postby SKM23435 » Mon Dec 19, 2016 1:34 pm

Hi Allenc,

Welcome to the forum.

The stent mentioned is a small plastic tube inserted between the transplanted kidney and the bladder at the time of the transplant operation. Its job is to keep this connection open while the joins heal. It sits in the ureter and is usually removed at about six weeks post transplant (depending on the hospital).

Hope this helps.
Started APD July 2014
On transplant and paired exchange lists.
Transplant 9/5/15
SKM23435
 
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Re: Very frequent urination after tx

Postby AllenC » Mon Dec 19, 2016 2:19 pm

Thankyou for the information. Much appreciated.
AllenC
 
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Re: Very frequent urination after tx

Postby AllenC » Mon May 21, 2018 9:10 pm

I thought I would give an update on my condition.
Yesterday I got the call and had a transplant last evening.
Currently laid on the bed with wires/tubes everywhere, most likely removed tomorrow.
Feeling rather pleased the way things occurred.
AllenC
 
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