Sleeping all the time

This is the forum for the Kidney Patient Guide. We welcome feedback about the site and any information that may be of use or interest to other visitors.

IMPORTANT NOTE: This forum is not for queries that would otherwise be addressed to a doctor. If you have a question about your condition or treatment please consult your renal unit or doctor. We do not have any editorial or medical resources to answer individual queries.

Moderator: administrator

Post Reply
Johnylefox
Posts: 71
Joined: Thu Aug 07, 2014 3:57 pm

Sleeping all the time

Post by Johnylefox »

Kidneys failed 11 months ago.
Been on home PD since.
I sleep all night but recently I am sleeping most of the day. I wake to take my partner to work then sleep for about 5 or 6 hours.
When she gets home we eat then I sleep.
I am depressed I acknowledge that.
Anyone else sleep tgis much?
I had iron IV a week ago and take weekly aranasp.
Not helped at all.
JMan
Posts: 3470
Joined: Fri Apr 23, 2004 10:21 am
Location: Lives in a slightly weird bit of Shropshire called Telford!

Re: Sleeping all the time

Post by JMan »

Whats your Hb level? Anything below about 10 and I tend to get feel very tired, get depressed and give up on any projects.

You need to talk to your EPO nurse/anemia team. Maybe try some different EPO? Sometimes Iron/Epo take a while to work, but they should.
Being anaemic,can make you feel depressed and if your generally have a 'low mood' you need to get onto your consultant soonish.

Maybe some counselling for the depression.. Your def not alone on this friend. And 11 months its still a shock to start on this journey


J




Johnylefox wrote:Kidneys failed 11 months ago.
Been on home PD since.
I sleep all night but recently I am sleeping most of the day. I wake to take my partner to work then sleep for about 5 or 6 hours.
When she gets home we eat then I sleep.
I am depressed I acknowledge that.
Anyone else sleep tgis much?
I had iron IV a week ago and take weekly aranasp.
Not helped at all.
"Dialysis! What is this? The dark ages!"
L. 'Bones' McCoy, ST"
Read my blog:)
Live to Fly
Image
http://www.flickr.com/cybercast
wagolynn
Posts: 1362
Joined: Thu May 23, 2013 2:49 pm

Re: Sleeping all the time

Post by wagolynn »

Hi Johnylefox,

It looks as though you have a very low red cell count (haemoglobin).

The usual mode of treatment is, iron infusions, and EPO. Healthy kidneys produce the hormone EPO which, in effect, kick your bone marrow up the backside to boost red cell production. However, without iron the bone marrow cannot make them. Iron shows up in blood tests as ferritin, (iron is toxic, so the body converts it to ferritin) any surplus iron is quickly dumped.

Assuming you have sufficient ferritin, the response to EPO is very quick.

Athlete's, using EPO to boost red cells (illegally), inject EPO the day before the event, and a couple of days later there is no trace of EPO left.

EPO injected into muscle hangs around longer, I think about a week to ten days.

A way to cope with the tiredness, is to decide what must be done today, one major job, and one thing that you like to do. The rule is the 'job' has to be done before the 'treat'. This works for me.
The rest of the day, I have a couple of books on the go, and I play at writing computer programs which I suppose is a form of a logical puzzle. Should you want to try this, download Scratch (it's free, and runs in a sand-box so you cannot screw-up your computer. Oops, Sand-box, an area created inside your computer such that no instructions can escape.)

The aim is to avoid going to sleep in the daytime because this soon becomes a habit, and sleeping at night becomes difficult, go to bed early by all means.
Johnylefox
Posts: 71
Joined: Thu Aug 07, 2014 3:57 pm

Re: Sleeping all the time

Post by Johnylefox »

Thank you one and all.
lashy
Posts: 69
Joined: Fri Mar 09, 2007 11:45 am
Location: cumbria

Re: Sleeping all the time

Post by lashy »

Good advice above.
Nothing to add except positive vibes being sent your way xxx
Post Reply