Hi,
I've just found this site, and even though no one has written on this in a few years, I thought I would give it a go.
I was diagnosed with IGA 10 years ago when I was 14, completely out of the blue. I had none of the normal symptoms at all. The only thing I had was constant UTI's and on a whim my GP decided to refer me to St Marys in Paddington for a consultation and kidney biopsy (Now they're fun aren't they!) After reviewing my notes (GFR of 80) and biopsy, and thankfully ruling our SLE I was eventually diagnosed with IGA and was promptly put on Enalapril. I then became a guinea pig in a sense to try and determine which other meds I could be put on, as at that age I really was not wanting to go on steroids. So instead I was put on Irbesartan as well as Enalapril, which I reacted very badly too, the mix took my blood pressure down too low and caused me to faint...and have a creatine level of 200 (I was told by my doctor that by her standard this was a record for her-at least I will be remembered).So I was swiftly taken off irbestartan and started Candesartan, low and behold the same thing happened again, and my GFR plumetted to 64 in a space of a month. It was then agreed after another kidney biopsy to ensure the right diagnosis had happened (after 4 attempts may I add, I was my doctors first ever failed attempt-so again, she'll never forget me!) I have been left just on Enalarpil, and thankfully my kidneys have stabilized on a GFR of 66. However, the medication does leave me really tired and lethargic still and I wondered whether this happened to anyone else?
Also, being a young woman, I was wondering whether there is anyone on here that may have gone through a pregnancy whilst diagnosed with this stupid disease. It's not something which I am planning right now, but it would be nice to hear whether there are any experiences about this. I have read and been told that I will be a high risk pregnancy when I do become it, but I have also been told that I cannot become pregnant on the medication that I am on as it will harm the baby. It's something that I havent had to think about before, but now I'm getting older, I'm hoping really for some comfort to put my mind at ease that it is possible.
Sorry for rambling on. But any help or feedback would be great!
Thanks
