suggestion... how about introducing ourselves??

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Re: suggestion... how about introducing ourselves??

Postby Balty » Wed Nov 22, 2017 8:53 pm

Hello! My brother passed away in July so I decided to pull it together on the body front, losing 50 lbs rather quickly through diet & exercise. I went to my GP for a physicial & all my blood work came back fine, except for my GFR, creatinine, & BUN. My GP concluded I've stage 3 ckd & referred me to a kidney doctor.

My GFR is 35 ml, creatinine is 2.01 mg/dl, & BUN is 40 mg/dl. My HCT was 36%, indicating anemia.

I've questions about whether stage 3 ckd is reversible? Can I raise my GFR (or at least maintain it)? Could my rapid weight loss have affected my GFR, creatinine, & BUN numbers? Are drug prescriptions available to bring GFR, creatinine, & BUN results into acceptable ranges?

I'm reading stage 3 ckd patients should adopt a low-protein, low phosphorus diet. If anyone could contribute any reliable diet tips on how to accomplish this, I would be most grateful.

My blood pressure, cholesterol, glucose, & BMI were all fine. Thanks to anyone who reads this board for comments, thoughts, & feedback.
Balty
 
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Re: suggestion... how about introducing ourselves??

Postby wagolynn » Thu Nov 23, 2017 9:23 pm

These web pages may help you. http://www.kidneypatientguide.org.uk/contents.php
And http://www.edren.org/pages/edreninfo/bl ... isease.php

These are reliable pages, you must always be sure of the source of any information on the web, there are some real cranks out there.

Drug cure - none that I have heard of, kidney function can be upset by trauma, and as a by product of other conditions, in these cases if the cause is eliminated the kidneys can recover.
Your kidneys may feel a rapid change in weight is a trauma.

Your Nephrologist will probably request more blood work in about a months time to work out what is happening, and other tests.

Diet - If you are in America you may be advised, by your Nephrologist, to reduce protein intake as in the USA people tend to have a high protein intake.
There are dietary requirements but these only apply to patients on dialysis, to help dialysis in it's weak areas, otherwise unless you are advised by your Nephrologist otherwise, move towards 5 portions of fruit, and vegetables, per day, and a portion of protein. (Google five-a-day for details)
This will improve your general health but will have little effect on your kidneys, your body will be able to cope better with the failing kidneys, and a transplant.
I say, 'move towards', because if you are not eating a high fibre diet, your gut needs time to develop the appropriate gut bacteria, lack of gut bacteria is the usual cause of wind (gas), when people make a rapid change of diet.

Advise your Nephrologist before you start changes, otherwise he/she will be trying to diagnose on a moving target.

Best wishes.
wagolynn
 
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Re: suggestion... how about introducing ourselves??

Postby Balty » Fri Nov 24, 2017 5:26 pm

Thanks for taking the time to reply!

Diet--I've been told CKD patients should limit protein to 25g of protein per day and limit phosphorus to 800mg to 1200mg per day.

Have you ever heard of this sort of advice?
Balty
 
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Re: suggestion... how about introducing ourselves??

Postby JMan » Sat Nov 25, 2017 5:54 pm

'The 'restricting protein' used to be the advice widely given. And it was then discovered to be a mistake.

I'd say don't excessively limit protein unless advised to do so, or bring up the question with your doc. For those on dialysis, some extra protein is actually beneficial as the treatment process can remove a certain amount.

The professionals blurb:

https://www2.kidney.org/professionals/K ... guide5.htm

See also https://www.kidney.org.uk/help-and-info ... ate-index/


You can find a lot more info here:
Eating Well With Kidney Failure, a Practical Guide and Cookbook
http://amzn.to/uoj87U

Eating Well for Kidney Health, Expert Guidance and Delicious Recipes
http://amzn.to/rYCcW2

Eating Well, Living with Kidney Disease
http://amzn.to/rEtgVb

Truly Tasty, over 100 recipes created by Irelands Top Chefs for Adults Living with Kidney Disease
http://amzn.to/va6Pln

Food With Thought PDF Download or printed copy for £2.50 via the NKF

http://www.kidney.org.uk/help/books/boo ... ththought/

Davita Recipes, an American website with many many recipes.

http://www.davita.com/recipes/
JMan
 
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Re: suggestion... how about introducing ourselves??

Postby boz » Sun Feb 04, 2018 11:45 am

Hi I'm david I live in scunthorpe I have stage 4 ckd and don't know much else, very scared about the future.
My gfr is 29 and thats all I know.
What's likely to happen from now on?, I'm a hgv driver.
boz
 
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Re: suggestion... how about introducing ourselves??

Postby wagolynn » Sun Feb 04, 2018 5:37 pm

Hi boz,
Everyone is a bit lost to start with, try looking at some of the stuff on this site http://www.kidneypatientguide.org.uk/contents.php
It should give you a feel for what it is all about, make a list of questions for your next appointment, most of us forget to ask questions when in front of the doctors, the list should help.

After you have read some of the stuff on the site, you can try asking specific questions on here.

Best wishes.
wagolynn
 
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Re: suggestion... how about introducing ourselves??

Postby Allie101 » Wed Feb 21, 2018 1:47 pm

Hi, I'm Allie, I'm 48 and I'm from the West Midlands. I'm on blood thinners for life due to getting two dvts, one in each leg. I get blood tests regularly to check liver and kidneys. A few weeks ago I was called in to see the doctor with regards to my last blood test. I was told that my kidneys were functioning at 40%, put on blood pressure tablets as my blood pressure has always been high, booked in for blood pressure check and another blood test at the beginning of March. He also referred me for an ultra sound. I had the ultrasound last weeks and it showed ok. I've now had an appointment for the renal clinic, not sure what that will entail. Had blood pressure taken this morning and it was taken 4 times by which time it was spot on. First time ever.
Allie101
 
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Re: suggestion... how about introducing ourselves??

Postby zoey4chaz » Tue Apr 10, 2018 2:59 am

Hi, Just signed up new here, not sure how to use the site. My name is Charlie..female I had live donor kidney transplant Nov. 16, 2017 have lots of questions please advise how to proceed.
Thank You
zoey4chaz
 
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Re: suggestion... how about introducing ourselves??

Postby wagolynn » Tue Apr 10, 2018 2:52 pm

Welcome to the site.

Questions, just ask, if anyone knows the answer they will answer.
wagolynn
 
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Re: suggestion... how about introducing ourselves??

Postby martinmufc » Thu Apr 12, 2018 5:01 pm

HI everyone

i was first diagnosed with asthma in 1983 due to constantly waking up at night breathless and swellings to my face put down to hey fever!.
I was rushed in hospital in sept 86 with a suspected heart attack at 19 due to fluid around my heart that showed up on a routine chest x-ray. I commenced dialysis in Oct 1986 and had a fistula fitted in March 87-still going strong today 31 years later.
I had my first transplant in Nov 1989 which lasted till Dec 2001,i then dialysised until July 2008 when i had my 2nd transplany which is still going strong thankfully.
I have seen the highs and lows over the years,from fantastic staff to sadly losing good friends, home dialysis, holidays abroad which saw me arrive for dialysis and nobody had heard of me! to water leaks at home,power cuts (why always when i was in dialysis),working full time and running a business.
One thing i've learned,never ever give up.

Martin
martinmufc
 
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Re: suggestion... how about introducing ourselves??

Postby Prayerbone » Thu May 10, 2018 8:01 pm

Hi my names Andy 52 , historical kidney problems from birth, and when I was 4..Been ok for years, but partner noticed I was drinking a lot and waking up in the middle of the night to wee, so had a blood test and was called in urgently eGFR of 17 :?

Sent for a scan last Thursday and was kept in over night left kidneys is basically finished , and right kidney obstructed had a stent and was sent home, asked to have follow up blood test, but still have a eGFR of 17.. Think the plans a balloon In tube if eGFR increases..

All a bit scary at present, not helped by the vagueness of surgeons aftercare grrrr getting Information been nearly impossible since my discharge..IE is it ok to work , how long before they would expect a increase etc etc

Odd thing is , other then a bad back and tired feel fine..

Just confused but hopeful

Regards
Andy
Prayerbone
 
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Re: suggestion... how about introducing ourselves??

Postby wagolynn » Fri May 11, 2018 3:05 pm

I am afraid they are as much in the dark as you...

It's all, very much wait, and see.

You could check your weight every 24 hrs, to see if you are shifting more pee.

Best wishes.
wagolynn
 
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