UPJ

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UPJ

Postby Jmig » Tue May 11, 2004 2:45 pm

Hi all,

I am new to this site, I've just been diagnosed with UPJ (last weds) and had a stent put in on last friday. My urolologist tells me that I need another procedure to fix this problem. From what i have been reading it sounds like I need to have a pyeloplasty done. Does anyone have any info about this procedure? From what he has told me he will need to make an incision... it seems like a pretty involved procedure...It seems like once you are diagnosed with UPJ, everything seems to happen pretty fast.

Any info that you all might have would be great!!!

Jen
Jmig
 
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Postby Shawnsmom » Wed May 12, 2004 1:31 pm

Hi Jen. As for info on pyloplasty, you can type it in on any search engine (google) and come up with tons of info.
My son was diagnosed with a possible UPJ (need another test to confirm) but his urologist wants to wait and see if it will correct itself as he grows. From what I have read, drs. are not so quick to do surgery on children as they do "outgrow" this sometimes.
I have researched this for months so I know there is a lot of information out there.
Good luck to you.
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Postby callie » Wed May 12, 2004 10:45 pm

Hi Jen

you replied to my e mail regarding my pyeloplasty I am having done next week...now I'm replying too you! I've had a upj since I was a child It went undiagnosed for 32 years despite recurring pain, and all the classic symptoms of upj. I was diagnosed with severe hydronephrosis a while back and after many tests a upj was confirmed. Because it is causing more problems and my kidney function is getting to be quite poor on that side, I am having a pyeloplasty done. Mine is being done laproscopically. If you have the option it seems that is the way to go...the other type of course is open surgery which has a longer recovery period (3-6 months for open pyeloplasty vs. 4-6 weeks for laproscopic) I too have also had a stent in, however it didn't work for me and was removed. Have the doctors told you that you will have pyeloplasty? They may want to see if the stent will helpyou before they try surgery. Good luck with whatever you decide to do, and let me know if I can answer any questions...I've read quite alot and my doctor has been great in giving me info as well.

Callie
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UPJ Obstruction Surgeries

Postby Canadian Christine » Thu May 13, 2004 4:49 am

Hi Jen. You can send me a private message. I am more than familiar with pyeloplasty procedures. I have recently had both an endoscopic pyelotomy & an open pyeloplasty. I just don't want to bore everyone here with the details, I have posted regarding my surgeries in the past. Thanks!

Canadian Christine
Canadian Christine :-)
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Postby Jmig » Thu May 13, 2004 1:09 pm

Hi,

Thanks for all of your replies....My UPJ had also gone undiagnosed for 27 years..despite all of the symptoms. I was diagnosed with hypertension, had awful left flank pain and also went though an MRA (in oct). This problem wasn't picked up until I broke my tailbone a few weeks ago and have to have an MRI done. It was picked up then, you can imagine that I am not happy with the people who read the results from my MRA. My doctor put the stent because my kidney was failing, I was down to 15% function. He wanted to at least improve the kidney while I am waiting for my next procedure.... from what he tells me I will never have 100% kidney function, only about 50-60%. Which is better than 15, I guess.... Take care and good health to every one!

Jen :D
Jmig
 
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