What more could the ideal KPA do for you?

This is the forum for the Kidney Patient Guide. We welcome feedback about the site and any information that may be of use or interest to other visitors.

IMPORTANT NOTE: This forum is not for queries that would otherwise be addressed to a doctor. If you have a question about your condition or treatment please consult your renal unit or doctor. We do not have any editorial or medical resources to answer individual queries.

Moderator: administrator

Post Reply
Helen Rambaut
Posts: 745
Joined: Mon Feb 13, 2006 11:34 pm
Location: London

What more could the ideal KPA do for you?

Post by Helen Rambaut »

Hey Guys.

I flew a flag yesterday at the "pre AGM" Charing Cross KPA committee meeting that I wanted to work for and be part of a wider KPA representing all the renal patients in the different hospitals/satellite units which are covered by the new Academic & Science Healthcare Trust which is Imperial College Healthcare NHS Trust.

The "Charing Cross" doctors, nursing and support staff have been integrated with the Hammersmith and St Marys teams and the Imperial College medical faculty. At the CX KPA AGM we heard about the exciting research projects underway to translate research in the lab to the benefit of the patient.

I have some idea about what activities could be expanded by a KPA to help kidney patients more and it would help to have the benefit of your experiences (first diagnosis, pre dialysis, HD and PD dialysis, post transplant, living donors).

So a question I have for you all is what would you ideally like your KPA (or other organisation) to do for you? Perhaps it does already. Examples of good practice please. Perhaps there are gaps. What are they?

Helen
Post Reply