Confusion about doctor's advice
Posted: Fri Jul 23, 2004 4:51 am
Hi everyone,
I am very confused and a bit disappointed...I was to have parathyroid surgery and then went to my nephrologist Wed. and he has said that I do not need the operation! He explained to me that since I take Dilantin for seizures, that has helped make my parathyroid levels, alkaline phosphates, etc. all out of whack. He has told me to take 200 I.U. of vitamin D and calcium (Caltrate D) 3 times a day in addition to my 0.25mcg of Calcitriol. He will also confer with my neurologist about changing my seizure medication. My blood work will be checked in another 2 weeks to see if this has helped me at all.
My transplant doc was the one who told me I needed this surgery and that medication was not an option. I am wondering who is correct and also about the side effects of too much Vitamin D (I am SICK of side effects from meds! ) I have been trying to find out the symptoms of Vitamin D toxicity on the web but without much luck. This wouldn't be the first time that the doctors have gotten it wrong or not even conferred with each other, so naturally I am a bit upset and worried. I called the txplant surgeon's office and his nurse said if the neph was treating me with the meds, okay.
Needless to say, I am extremely confused! Does anyone have any advice or opinions on Vitamin D and its effects? Does anyone have any experiences with it? THANK YOU so much for any replies...I am wondering what to do at this point.
-Pam
I am very confused and a bit disappointed...I was to have parathyroid surgery and then went to my nephrologist Wed. and he has said that I do not need the operation! He explained to me that since I take Dilantin for seizures, that has helped make my parathyroid levels, alkaline phosphates, etc. all out of whack. He has told me to take 200 I.U. of vitamin D and calcium (Caltrate D) 3 times a day in addition to my 0.25mcg of Calcitriol. He will also confer with my neurologist about changing my seizure medication. My blood work will be checked in another 2 weeks to see if this has helped me at all.
My transplant doc was the one who told me I needed this surgery and that medication was not an option. I am wondering who is correct and also about the side effects of too much Vitamin D (I am SICK of side effects from meds! ) I have been trying to find out the symptoms of Vitamin D toxicity on the web but without much luck. This wouldn't be the first time that the doctors have gotten it wrong or not even conferred with each other, so naturally I am a bit upset and worried. I called the txplant surgeon's office and his nurse said if the neph was treating me with the meds, okay.
Needless to say, I am extremely confused! Does anyone have any advice or opinions on Vitamin D and its effects? Does anyone have any experiences with it? THANK YOU so much for any replies...I am wondering what to do at this point.
-Pam