nycpetit wrote:I can't even really write it all out right now..but my treatment at that center was never something i was comfortable with..but at the end of the day..it became a situation where neither party was comfortable it seemed with going forward with the surgery
it's my responsibility to find another place to go to...so now I am slave to the phone and trying to find another unit that could operate on me quickly..problem is no place has an opening...and so it's possible while I could easily have avoided dialysis..that I may end up having to do it to because i can't get a surgery date elsewhere
let me just tell you that the healthcare system in this country stinks
You are not kidding. Between people not able to even afford health insurance to the companies cutting costs (and the patient suffering for it), it's crazy. I told my Mom last week that it's amazing what you learn about the industry when you actually need it.
My state renal insurance has cut some costs, and that means it limits them on what they are willing to cover, medicine-wise. For instance, I have to take Renagel for high Phosphorus. In the beginning, the only thing the ins. company needed was a copy of my labs, and the doctor could prescribe as much as I needed.
NOW, they will only cover up to 6 tabs a day (two with each meal). I take more than that per day, and they will no longer accept labwork or a doctor's authorization to obtain more. So now, I have to rely on the doctor getting samples from the Renagel rep, and supplement it with PhosLo, which I am not too comfortable with (because my calcium is high also), and I think the PhosLo slightly aggrevate symptoms of neuropathy (which is quite annoying to have).
Soooo, I understand a bit of what you are going through. In Addition, I no longer like my neph team because of a variety of reasons, especially the PD nurse. At first, there were 2 of them. One has recently started a nursing service, so her presence is limited now and the one that is left is a piece of work. I don't like the way he takes bloodwork (sometimes he winds up poking me twice and I wind up with such a bruise on my arm), and now he's swamped dealing with 6 new PD patients and seems to be overwhelmed with work. That, IMO, is not good. He's already forgotten a few things that he was supposed to take care of for me, so now I have to put up with that. *sighs*
Anyway, I'm going to see if I can switch my medical team to a hospital unit (like I was in the very beginning). I only switched from that because at the time, I wanted to go to a place that was closer to home. Now, I need quality care as opposed to location.