Lost the race

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Lost the race

Postby Notso » Thu Mar 29, 2018 10:25 am

I took a punt and lost. I ran out of kidney function before a possible transplant was organised. Consequently I'm the proud owner of a tunneled neckline as I did not have a fistula.

It happens very quickly when it happens that's for sure. I've now had 3 consecutive days of haemo and now will settle into 3 days a week.

I'm still peeing vast amounts so I'm not having much water taken off and have been improved by the dialysis already.

Hopefully my brother's donation is just around the corner.

God bless the renal nurses who are so knowledgeable and kind at the Royal Darwin Hospital.
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Joined: Mon Aug 03, 2015 2:34 am

Re: Lost the race

Postby Birdman » Sun Apr 01, 2018 12:52 pm

I was on PD until it went horribly wrong, resulting in an emergency neck line, then a fistula.

That was 18 months ago, and although I am on haemo at the local hospital 3 times a week, I am better now than I have been for a long, long time.

Hope this helps to reassure you.
Posts: 45
Joined: Sun Jun 14, 2015 1:12 pm

Re: Lost the race

Postby Notso » Tue Apr 03, 2018 11:20 pm

Thanks Birdman. I too am feeling better now that I have started.

Prior to starting I had this idea that you became an invalid once that dialysis commences. In reality I was an invalid prior to starting as I was so ill. Dialysis has set me free - Happy Days.
Posts: 25
Joined: Mon Aug 03, 2015 2:34 am

Re: Lost the race

Postby Thumps » Sat Apr 07, 2018 2:54 pm

That's great to hear :)
PKD/PLD diagnosed 1994, CKD stage 5 Oct 2007, Living Donor Kidney Transplant Dec 2008, still going strong!
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Joined: Thu Sep 14, 2006 3:50 pm
Location: London, England

Re: Lost the race

Postby angie100 » Sun Apr 08, 2018 6:22 pm

Hi Notso..

Hope you are feeling better..i hope things go well with your transplant.my function is also declining and have had talks about diaylsis etc..keep your spirits up.sounds like your doing well..best wishes..
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Joined: Thu Dec 22, 2016 4:08 pm

Re: Lost the race

Postby Notso » Wed Apr 11, 2018 5:44 am

Thanks Angie. It seems you won as I got to dialysis first. For me, dialysis has been great in that it has quickly moved me from almost total incapacitation to a situation where i am able to do everyday things and begin to build up my strength and stamina.
I am still waiting on the prospect of a kidney from my brother. He had some further tests this week to cover off on something unexpected but I should know soon.
If the transplant is off the cards I intend to jump across to home nocturnal dialysis (every night mostly) as I think it is a very good solution.
Hopefully things go as smoothly as possible for you in the future. Cheers and good luck.
Posts: 25
Joined: Mon Aug 03, 2015 2:34 am

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