Multiple Angiomyolipomas but no TSC. Anyone else have this?

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Multiple Angiomyolipomas but no TSC. Anyone else have this?

Postby beabahmcgee » Tue Sep 26, 2017 3:12 am

I have angiomyolipomas on both kidneys and have had genetic testing for TSC (tubular sclerosis) but do not have it. Does anyone else have this type of issue? I'm asking for my primary to refer me to a cancer genetic counselor as I've been told it's very rare to have multiple AMLs and no TSC. Anyone else going through this?
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