Newbie to Forum - Help with Nephrocalcinosis
Posted: Mon Apr 10, 2017 3:56 pm
Hello
I am new to this forum, but it feels quite refreshing to be able to engage with people suffering with similar problems and have an understanding, how everyday life feels
Last year I was diagnosed with Nephrocalcinosis. I have suffered with Kidney pain and recurrent UTI for the 18 years, there was never really an answer, until I threw a tantrum and finally got referred to a specialist. My right kidney is severely scarred due to the amount of infections I have (at least one a month). My right kidney is the worst with only 30 % function. I suffer with chronic pain and I will be honest I am now totally depressed living a life with UTI and pain.
Last month I saw a consultant at the Royal Free and he is confident that he knows what might be causing the calcium build up, and if he is correct, medication will minimise this process. However, there is no way they will be able to get rid of the calcium deposits in the kidneys. This has left me feeling really fed up, because I can not imagine the rest of my life like this.
Any advice, any one with the same condition it would be great to talk too.
Many thanks
I am new to this forum, but it feels quite refreshing to be able to engage with people suffering with similar problems and have an understanding, how everyday life feels
Last year I was diagnosed with Nephrocalcinosis. I have suffered with Kidney pain and recurrent UTI for the 18 years, there was never really an answer, until I threw a tantrum and finally got referred to a specialist. My right kidney is severely scarred due to the amount of infections I have (at least one a month). My right kidney is the worst with only 30 % function. I suffer with chronic pain and I will be honest I am now totally depressed living a life with UTI and pain.
Last month I saw a consultant at the Royal Free and he is confident that he knows what might be causing the calcium build up, and if he is correct, medication will minimise this process. However, there is no way they will be able to get rid of the calcium deposits in the kidneys. This has left me feeling really fed up, because I can not imagine the rest of my life like this.
Any advice, any one with the same condition it would be great to talk too.
Many thanks