new; daughter of mum with kidney troubles
Posted: Tue Apr 04, 2017 6:08 am
good evening everyone (or morning... night?... whichever it happens to be... currently 12:48AM here)
as my title to this post indicates, i am the daughter to someone who has been suffering a lot with kidney troubles and it has been stressing me (and her!! ) out to the moon and back! i could definitely use some help with some clarification from what i have read on here are some boundlessly intelligent people.
please forgive me for any medical terminology that i botch... i'm 31 and swear i have barely learned my own name some days of the week lately. so everything started back in i believe it was early 2015? possibly late 2014. somewhere around there when i was off at college, and got the news that mum was in late stage 4 kidney disease. my family deals with things in inappropriate jokes, so i remember we spoke that i was the one that would be donating a kidney when it came time because my three brothers were all married and had kids and i didn't, which made me the 'spare' child . regardless, i made plans after i finished college to begin testing, and mum worked with doctors to adjust her medications and get her blood pressure under control, and lo-and-behold, her kidneys got better! her levels got better she stabilised, so all was good!
so then jump ahead to the beginning of this year. i had to move back home because ironically i got sick. mum started noticing that her abdomen was getting bigger and she was gaining weight, despite the fact that she'd been diagnosed with GERD and was throwing up a lot as she couldn't keep barely anything down. very rapidly her stomach and abdomen started getting bigger and with a CT scan and x-rays they found that she had fluid build up all in her abdominal cavity- between 6-10 litres! they tested her for all cancers, which came back negative (woot! ). they had to drain the fluid, but it kept building up-- even going into her lungs making it hard to breath. they're thinking this has to do with her kidney disease, but are unsure. now she's starting to get weird, intense bruises on her legs and other places as the fluid keeps building up.
sorry that all drained out. i just really needed to get everything all out as it's really cathartic. has anyone here experienced the fluid build up and bruising and that? is that near the end stage of the kidney failure? she's had so much blood work and everything lately, but nothing has come back saying that her kidney levels were dangerously low. she's also gotten to the point right now where she wants to give up with going back and getting things looked at, which i almost can't blame her for. each time she goes she seems to come back with three more worse symptoms, and it's all getting worse, and i feel so helpless sitting here watching her get worse and worse and they have no idea why or how to stop it. she can't even go up to bed at night to sleep anymore because the fluid has gone into her lungs making it too difficult to breath, and though they can drain it it out, it builds back up after a couple of days.
ugh... alright... thanks everyone for listening. if anyone here has any sage advice, or experience, or... anything really. it would be great to hear from you.
thanks!
~*~ midnight sun ~*~
as my title to this post indicates, i am the daughter to someone who has been suffering a lot with kidney troubles and it has been stressing me (and her!! ) out to the moon and back! i could definitely use some help with some clarification from what i have read on here are some boundlessly intelligent people.
please forgive me for any medical terminology that i botch... i'm 31 and swear i have barely learned my own name some days of the week lately. so everything started back in i believe it was early 2015? possibly late 2014. somewhere around there when i was off at college, and got the news that mum was in late stage 4 kidney disease. my family deals with things in inappropriate jokes, so i remember we spoke that i was the one that would be donating a kidney when it came time because my three brothers were all married and had kids and i didn't, which made me the 'spare' child . regardless, i made plans after i finished college to begin testing, and mum worked with doctors to adjust her medications and get her blood pressure under control, and lo-and-behold, her kidneys got better! her levels got better she stabilised, so all was good!
so then jump ahead to the beginning of this year. i had to move back home because ironically i got sick. mum started noticing that her abdomen was getting bigger and she was gaining weight, despite the fact that she'd been diagnosed with GERD and was throwing up a lot as she couldn't keep barely anything down. very rapidly her stomach and abdomen started getting bigger and with a CT scan and x-rays they found that she had fluid build up all in her abdominal cavity- between 6-10 litres! they tested her for all cancers, which came back negative (woot! ). they had to drain the fluid, but it kept building up-- even going into her lungs making it hard to breath. they're thinking this has to do with her kidney disease, but are unsure. now she's starting to get weird, intense bruises on her legs and other places as the fluid keeps building up.
sorry that all drained out. i just really needed to get everything all out as it's really cathartic. has anyone here experienced the fluid build up and bruising and that? is that near the end stage of the kidney failure? she's had so much blood work and everything lately, but nothing has come back saying that her kidney levels were dangerously low. she's also gotten to the point right now where she wants to give up with going back and getting things looked at, which i almost can't blame her for. each time she goes she seems to come back with three more worse symptoms, and it's all getting worse, and i feel so helpless sitting here watching her get worse and worse and they have no idea why or how to stop it. she can't even go up to bed at night to sleep anymore because the fluid has gone into her lungs making it too difficult to breath, and though they can drain it it out, it builds back up after a couple of days.
ugh... alright... thanks everyone for listening. if anyone here has any sage advice, or experience, or... anything really. it would be great to hear from you.
thanks!
~*~ midnight sun ~*~