Testing for Transplant
Posted: Thu Mar 09, 2017 12:47 am
My cousin offered to donate last May and started testing June.
We are still ongoing.
He missed one appointment in September and it took three months before they could see him again, that's life I suppose.
Then he was given a 24 hours BP monitor to wear on 2 February.
Still no results from this test.
I speak to the TX co-ordinator and she just tells me she cannot give any information.
I cannot think of any serious condition where you have a course of treatment and they cannot tell you when it will happen, what the key states are, how far you are down the line.
I have a donor, he is there, waiting. He now wants two months off to sort out his daughters wedding which I fully understand. He nearly kicked my door down to give the kidney. But the TX tests just take forever.
I recently switched from PD to hospital heamo and my health is good. But my mental health is like a plate of confused jelly.
In times gone by I would wait till Friday and go the pub for 4 or 5 pints and would float home having got it off my chest.
It just seems like I am adrift and nobody takes ownership.
I know people have worse situations, but I need to look after me.
We are still ongoing.
He missed one appointment in September and it took three months before they could see him again, that's life I suppose.
Then he was given a 24 hours BP monitor to wear on 2 February.
Still no results from this test.
I speak to the TX co-ordinator and she just tells me she cannot give any information.
I cannot think of any serious condition where you have a course of treatment and they cannot tell you when it will happen, what the key states are, how far you are down the line.
I have a donor, he is there, waiting. He now wants two months off to sort out his daughters wedding which I fully understand. He nearly kicked my door down to give the kidney. But the TX tests just take forever.
I recently switched from PD to hospital heamo and my health is good. But my mental health is like a plate of confused jelly.
In times gone by I would wait till Friday and go the pub for 4 or 5 pints and would float home having got it off my chest.
It just seems like I am adrift and nobody takes ownership.
I know people have worse situations, but I need to look after me.