Testing for Transplant

This is the forum for the Kidney Patient Guide. We welcome feedback about the site and any information that may be of use or interest to other visitors.

IMPORTANT NOTE: This forum is not for queries that would otherwise be addressed to a doctor. If you have a question about your condition or treatment please consult your renal unit or doctor. We do not have any editorial or medical resources to answer individual queries.

Moderator: administrator

Post Reply
Johnylefox
Posts: 71
Joined: Thu Aug 07, 2014 3:57 pm

Testing for Transplant

Post by Johnylefox »

My cousin offered to donate last May and started testing June.

We are still ongoing.

He missed one appointment in September and it took three months before they could see him again, that's life I suppose.

Then he was given a 24 hours BP monitor to wear on 2 February.

Still no results from this test.

I speak to the TX co-ordinator and she just tells me she cannot give any information.

I cannot think of any serious condition where you have a course of treatment and they cannot tell you when it will happen, what the key states are, how far you are down the line.

I have a donor, he is there, waiting. He now wants two months off to sort out his daughters wedding which I fully understand. He nearly kicked my door down to give the kidney. But the TX tests just take forever.

I recently switched from PD to hospital heamo and my health is good. But my mental health is like a plate of confused jelly.

In times gone by I would wait till Friday and go the pub for 4 or 5 pints and would float home having got it off my chest.

It just seems like I am adrift and nobody takes ownership.

I know people have worse situations, but I need to look after me.
rheaybou
Posts: 1381
Joined: Mon Nov 14, 2011 11:04 am
Location: Doncaster

Re: Testing for Transplant

Post by rheaybou »

Hi,

From experience the workup / testing for transplant is the most stressful experience myself and my donor went through - this is my story http://livelifegivelife.org.uk/our-blog ... h39s-story

It took almost a year to complete the tests and psychological evaluation and I had the same frustrations that you have been going through. The TX coordinator can't give you details on the progress / stage your donor is at because of patient confidentiality.

Is there anyone who isn't connected to you that you could talk to? Helps to have an ear that isn't family who will let you vent - failing that go to the pub the night before dialysis and have 3-4 gins.
Now 35 with Alports and I had my first kidney-versary 18th feb 2013....I hope to have many more.

My living donor and his family are doing all well.

==
Alports.
Post Reply