Re: Gfr down to 19
Posted: Sat Mar 25, 2017 9:11 am
Thanks for the replies guys. I think I'm gonna just put up with it and not take the Furosemide. I'll just buy some jeans in a bigger size for when it happens. My consultant said that my kidneys are less able to cope with hormonal water retention.
Yes, the gout started when I was pregnant with my son as did cramp in my thighs. I kept going to A & E thinking I'd sprained my ankle, there's no worse pain in the world but I'm on allopurinol to try to prevent it.
At my last consultation my consultant suggested we start my pre transplant work up tests so they can put me on the register but in a suspended state to be activated when needed. He made a loose prediction that I might have a couple of years before I will need dialysis/transplant. I have my sister and husband both willing to donate. The thinking now is that my consultant would be looking to transplant prior to me having to start dialysis. This is a tricky thing to time because it's silly transplanting too soon due to a transplanted kidney not lasting forever. I suppose dialysis costs a lot of money so it makes sense to avoid people having to wait on dialysis for ages, especially if they have a potential live donor.
It's really hard not to worry but then I shouldn't spoil these last few relatively healthy years worrying about what I can't control. I'm hoping at least I can manage to stay well and working as long as possible until my son is in high school and a little less dependant on me - he's 9. The pressures of family are hard, my husband is registered blind, can't drive so practically a lot relies on me being well.
But there's people a lot worse off and I think a positive attitude will help in the long run. I just have to buck up and carry on like we all do. Keep well
Yes, the gout started when I was pregnant with my son as did cramp in my thighs. I kept going to A & E thinking I'd sprained my ankle, there's no worse pain in the world but I'm on allopurinol to try to prevent it.
At my last consultation my consultant suggested we start my pre transplant work up tests so they can put me on the register but in a suspended state to be activated when needed. He made a loose prediction that I might have a couple of years before I will need dialysis/transplant. I have my sister and husband both willing to donate. The thinking now is that my consultant would be looking to transplant prior to me having to start dialysis. This is a tricky thing to time because it's silly transplanting too soon due to a transplanted kidney not lasting forever. I suppose dialysis costs a lot of money so it makes sense to avoid people having to wait on dialysis for ages, especially if they have a potential live donor.
It's really hard not to worry but then I shouldn't spoil these last few relatively healthy years worrying about what I can't control. I'm hoping at least I can manage to stay well and working as long as possible until my son is in high school and a little less dependant on me - he's 9. The pressures of family are hard, my husband is registered blind, can't drive so practically a lot relies on me being well.
But there's people a lot worse off and I think a positive attitude will help in the long run. I just have to buck up and carry on like we all do. Keep well