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Sleeping all the time

PostPosted: Mon Nov 14, 2016 8:57 pm
by Johnylefox
Kidneys failed 11 months ago.
Been on home PD since.
I sleep all night but recently I am sleeping most of the day. I wake to take my partner to work then sleep for about 5 or 6 hours.
When she gets home we eat then I sleep.
I am depressed I acknowledge that.
Anyone else sleep tgis much?
I had iron IV a week ago and take weekly aranasp.
Not helped at all.

Re: Sleeping all the time

PostPosted: Tue Nov 15, 2016 2:07 pm
by JMan
Whats your Hb level? Anything below about 10 and I tend to get feel very tired, get depressed and give up on any projects.

You need to talk to your EPO nurse/anemia team. Maybe try some different EPO? Sometimes Iron/Epo take a while to work, but they should.
Being anaemic,can make you feel depressed and if your generally have a 'low mood' you need to get onto your consultant soonish.

Maybe some counselling for the depression.. Your def not alone on this friend. And 11 months its still a shock to start on this journey


J





Johnylefox wrote:Kidneys failed 11 months ago.
Been on home PD since.
I sleep all night but recently I am sleeping most of the day. I wake to take my partner to work then sleep for about 5 or 6 hours.
When she gets home we eat then I sleep.
I am depressed I acknowledge that.
Anyone else sleep tgis much?
I had iron IV a week ago and take weekly aranasp.
Not helped at all.

Re: Sleeping all the time

PostPosted: Tue Nov 15, 2016 3:38 pm
by wagolynn
Hi Johnylefox,

It looks as though you have a very low red cell count (haemoglobin).

The usual mode of treatment is, iron infusions, and EPO. Healthy kidneys produce the hormone EPO which, in effect, kick your bone marrow up the backside to boost red cell production. However, without iron the bone marrow cannot make them. Iron shows up in blood tests as ferritin, (iron is toxic, so the body converts it to ferritin) any surplus iron is quickly dumped.

Assuming you have sufficient ferritin, the response to EPO is very quick.

Athlete's, using EPO to boost red cells (illegally), inject EPO the day before the event, and a couple of days later there is no trace of EPO left.

EPO injected into muscle hangs around longer, I think about a week to ten days.

A way to cope with the tiredness, is to decide what must be done today, one major job, and one thing that you like to do. The rule is the 'job' has to be done before the 'treat'. This works for me.
The rest of the day, I have a couple of books on the go, and I play at writing computer programs which I suppose is a form of a logical puzzle. Should you want to try this, download Scratch (it's free, and runs in a sand-box so you cannot screw-up your computer. Oops, Sand-box, an area created inside your computer such that no instructions can escape.)

The aim is to avoid going to sleep in the daytime because this soon becomes a habit, and sleeping at night becomes difficult, go to bed early by all means.

Re: Sleeping all the time

PostPosted: Wed Nov 16, 2016 10:02 pm
by Johnylefox
Thank you one and all.

Re: Sleeping all the time

PostPosted: Wed Nov 30, 2016 12:06 am
by lashy
Good advice above.
Nothing to add except positive vibes being sent your way xxx