How much fluid do you drink on PD?

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How much fluid do you drink on PD?

Postby Pinkdiamonds14 » Mon Aug 22, 2016 9:48 am

I appreciate that fluid intake is very individual, will vary from person to person, and will depend on residue kidney function, urine output,etc, but it would be very helpful to have some indication of how much you drink on a daily basis. Are you given specific volumes by your PD nurse? It appears such a balancing act to avoid both dehydration and fluid retention, particularly during this hot and humid weather. Many thanks.
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Re: How much fluid do you drink on PD?

Postby wagolynn » Mon Aug 22, 2016 11:09 am

Hi Pinkdiamonds14,

This is really a question for your PD nurse but if you are passing water then sort of 'normal'(say about 2 l) amounts will be OK.
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Re: How much fluid do you drink on PD?

Postby rheaybou » Mon Aug 22, 2016 2:56 pm

It really is a question your PD nurse/Dr will tell you, however there are ways to check if you are taking on excessive amounts of fluid.

What you need to do is know your dry weight, once you have this then a fluid balance is what I would do. Measure/best estimate all fluid in and do the same for all fluid out including what is removed on APD/CAPD drains. In the hot weather you will sweat/lose about 500ml a day and less in the cooler months. You would then need to take back and fluid you have lost if your output is greater than input and vice versa.
Fluid restriction is by far the hardest part of renal failure.
Now 35 with Alports and I had my first kidney-versary 18th feb 2013....I hope to have many more.

My living donor and his family are doing all well.

==
Alports.
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Re: How much fluid do you drink on PD?

Postby SKM23435 » Mon Aug 22, 2016 4:48 pm

I agree with the above. Talk to your dialysis nurse/doctor.
I was drinking 2 litres a day. The standard advice I was given was 750ml more than you pee out. However it struck me that the less I drunk the less I'd pee, and vica versa. I guess my kidneys were handing water just not other waste products.
We are all different. You need to speak to someone who knows your case.
Started APD July 2014
On transplant and paired exchange lists.
Transplant 9/5/15
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Re: How much fluid do you drink on PD?

Postby Pinkdiamonds14 » Fri Aug 26, 2016 9:28 pm

Thank you all. He had spoken to his PD nurses but their responses had been vague so I was just trying to gauge what others were drinking whilst on PD.
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Re: How much fluid do you drink on PD?

Postby wagolynn » Sun Aug 28, 2016 3:10 pm

Pinkdiamonds14 wrote:Thank you all. He had spoken to his PD nurses but their responses had been vague so I was just trying to gauge what others were drinking whilst on PD.


He should not be drinking less than 1 litre per day, unless specifically told to, and he will definitely be told if less is appropriate.
Nearer 2 litres per day is better if he is passing some water.

The more the kidneys pass the better but with no input then there will be no output.

PD can be adjusted to match his intake, within limits, but it will take time to get it right, what the nurse needs at this stage is a consistent intake, and to know if there are any significant changes.

Though they do not like to admit it, the whole process is one of trial and error but then most medical things are.
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Re: How much fluid do you drink on PD?

Postby Pinkdiamonds14 » Fri Sep 02, 2016 8:18 pm

Thank you once again Wagolyn, most helpful. Yes you are absolutely right - trial and error - it is just so individual. I find it so difficult that he never seems to get a definitive answer. His PET results were all good and within the acceptable range, ankle swelling much reduced but after a couple of weeks of good drains they've now reduced again. Just when you hope things have settled down.......
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Re: How much fluid do you drink on PD?

Postby wagolynn » Sat Sep 03, 2016 4:11 pm

Hi Pinkdiamonds14,

Don't expect everything to work like clockwork, there will be good periods and bad.

The important thing is make sure the PD nurse is aware of any changes.

Some people have trouble with protein fibres clogging the inlet/outlet (inside the peritoneum) of the catheter. These can often be seen in the used dialysate as clumps of fibres.

Comparing weight, before and after gives an indication of how much has been retained. If the patient is dehydrated, they may absorb some of the water in the dialysate to make-up for the deficit.
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