Restless legs
Posted: Sat Jun 25, 2016 9:37 pm
Since Christmas my partner has had horrendous restless legs. It started before he went onto capd in dec (he has fsgs) initially it improved, but since April time they have increasingly got worse. He changed onto apd last month and there have been a few teething problems but generally all is working well. His bloods etc are good.
The restless legs start mid afternoon and continue until the early hours of the morning. They are awful, he can't sit still he has to keep moving them and they even twitch is he gets to sleep. When he's at home we just ignore them ( although that's very difficult when we are trying to sleep) it is a particular problem when driving and when he sits in work meetings.
He has tried quinine sulphate, but this doesn't seem to have made any difference. His consultant has suggested sedatives, but this won't help when he's at work or driving. The hospital seem to be surprised he's still working!
This is now having a massive impact on both of us, as neither of us are sleeping. We have started a food and exercise diary as we hope we can pin it down to something specific. We thought it was too much exercise, he still manages the gym. Then we thought it was too little exercise....... We just can't work it out.
Has anyone else got experience of this? Any ideas of what might help.
Thank you
Also kidney disease is pants! Dialysis is pants!
The restless legs start mid afternoon and continue until the early hours of the morning. They are awful, he can't sit still he has to keep moving them and they even twitch is he gets to sleep. When he's at home we just ignore them ( although that's very difficult when we are trying to sleep) it is a particular problem when driving and when he sits in work meetings.
He has tried quinine sulphate, but this doesn't seem to have made any difference. His consultant has suggested sedatives, but this won't help when he's at work or driving. The hospital seem to be surprised he's still working!
This is now having a massive impact on both of us, as neither of us are sleeping. We have started a food and exercise diary as we hope we can pin it down to something specific. We thought it was too much exercise, he still manages the gym. Then we thought it was too little exercise....... We just can't work it out.
Has anyone else got experience of this? Any ideas of what might help.
Thank you
Also kidney disease is pants! Dialysis is pants!