CMV
Posted: Wed Jun 08, 2016 10:08 pm
Hi I'm after advice.
Brief description my daughter who is now 22 went into kidney failure out the blue in May 2015 started dailysis end June had a living unrelated transplant Octover 2015. Since feburary this year she keeps getting CMV as the donor was positive and daughter negative, (this was not pointed out before transplant) they have prescribed her in the past valganciclovior on all the occasions and when bloods come back negative they stop the dose however on the last occasion it showed up (3 weeks ago) because the reading was low at 2.49 they didn't prescribe valganciclovior and are just monitoring her at weekly bloods, what my question is how long can't it take for CMV to clear off and do one!, if it wasn't for the CMV and the odd occasion of low white blood count it's been plain sailing. As mu daughter is young and kidney failure came out the blue you can imagine that this has been a shock for her and at times I think she acts/ feels that it was just a bad dream I am helping her come to terms with all of it but until I feel she fully understands I'm her extra eyes and ears and I try to do and help her by dropping hints on what she should do, hope that all makes sense.
Brief description my daughter who is now 22 went into kidney failure out the blue in May 2015 started dailysis end June had a living unrelated transplant Octover 2015. Since feburary this year she keeps getting CMV as the donor was positive and daughter negative, (this was not pointed out before transplant) they have prescribed her in the past valganciclovior on all the occasions and when bloods come back negative they stop the dose however on the last occasion it showed up (3 weeks ago) because the reading was low at 2.49 they didn't prescribe valganciclovior and are just monitoring her at weekly bloods, what my question is how long can't it take for CMV to clear off and do one!, if it wasn't for the CMV and the odd occasion of low white blood count it's been plain sailing. As mu daughter is young and kidney failure came out the blue you can imagine that this has been a shock for her and at times I think she acts/ feels that it was just a bad dream I am helping her come to terms with all of it but until I feel she fully understands I'm her extra eyes and ears and I try to do and help her by dropping hints on what she should do, hope that all makes sense.