Diagnosed with IGAN what do I need to know
Posted: Wed May 11, 2016 7:26 pm
Hi guys,
I'm 27 and about a month or so ago I was diagnosed with IGA Nephropathy, I have an appointment coming up and want to know what should I be asking the doctor ? All I know is my kidney function is around 70% but not much more than that. I'll put my background storey below for those who want to read. I'll be honest as I can so please be kind, I know it's easy to judge.
I was a body builder and had been for 11 years. So my diet was high protein for a long time, on top of that I did take steroids, not in the amounts that others do but nether the less I did. I was at the end of my second course where I became very ill, after 4 days of constantly being sick at home I went to hospital where I stayed for just over a month from there.
Long story short I gained sepsis which attacked my kidneys and heart, I was a day from death if not closer. My kidney function dropped to sub 10% to around 4% I believe and I was put on dialysis 4 times. my kidney function was regained from that point and rose to where it is now.
Subsequently I had a biopsy which revealed I have IGA Nephropathy. I have done some reading on it and vainly understand what it is, but what questions to I have to ask the doctor to find out what I need to know in terms of how this is going to effect me short and long term.
I have a habit of not making a big deal over big things, and to be honest brushed this off at first but now it is playing on my mind.
Any help appreciated and I am more than happy to give more info if anyone wants to hear more
I'm 27 and about a month or so ago I was diagnosed with IGA Nephropathy, I have an appointment coming up and want to know what should I be asking the doctor ? All I know is my kidney function is around 70% but not much more than that. I'll put my background storey below for those who want to read. I'll be honest as I can so please be kind, I know it's easy to judge.
I was a body builder and had been for 11 years. So my diet was high protein for a long time, on top of that I did take steroids, not in the amounts that others do but nether the less I did. I was at the end of my second course where I became very ill, after 4 days of constantly being sick at home I went to hospital where I stayed for just over a month from there.
Long story short I gained sepsis which attacked my kidneys and heart, I was a day from death if not closer. My kidney function dropped to sub 10% to around 4% I believe and I was put on dialysis 4 times. my kidney function was regained from that point and rose to where it is now.
Subsequently I had a biopsy which revealed I have IGA Nephropathy. I have done some reading on it and vainly understand what it is, but what questions to I have to ask the doctor to find out what I need to know in terms of how this is going to effect me short and long term.
I have a habit of not making a big deal over big things, and to be honest brushed this off at first but now it is playing on my mind.
Any help appreciated and I am more than happy to give more info if anyone wants to hear more