Devasting news (angiomyolipoma)
Posted: Thu Apr 28, 2016 11:20 am
Hi, Today I have re-joined this forum, I was BusyBee way back in 2006 (just looked my old profile up and realise how far I have come from those dark, unsettled days) 10 years, wow. I will fast forward my life from 10 years ago, I was in a dead end marriage (now divorced him and pleased to say re-married to a wonderful man) my step-dad was a live donor back in 2008.
I'm back on the list (have been for nearly 14 months now) my dear mum has been having tests these last 6 months to come forward to donate. I've really been through a roller coaster of emotions with this decision, after all she is MY mum!
Yesterday we both attended hospital as it was going to be 'the decision day' when the consultant would tell us if she was suitable.....We sat down and his words...."The operation will not go ahead...." just echoed round and round my head, the whole room was spinning, it really felt like something out of a film. Bits of papers where being passed around, lips were moving but no sound coming out, voices all merging into one voice.
I know it's always a 50/50 chance but we both have been so convinced the transplant would go ahead. My mum has this growth 'angiomyolipoma' I've been too scared to type the word into google! I know its not cancer, but is there anyone in this wonderful 'kidney community' could explain the meaning of this? I honestly haven't slept last night, I have a huge headache and just feel the world had collapsed on me. Not wanting to feel sorry for myself, I thought I would turn to here as I know from previous experience there is a wealth of knowledge on this forum.
Thank you
I'm back on the list (have been for nearly 14 months now) my dear mum has been having tests these last 6 months to come forward to donate. I've really been through a roller coaster of emotions with this decision, after all she is MY mum!
Yesterday we both attended hospital as it was going to be 'the decision day' when the consultant would tell us if she was suitable.....We sat down and his words...."The operation will not go ahead...." just echoed round and round my head, the whole room was spinning, it really felt like something out of a film. Bits of papers where being passed around, lips were moving but no sound coming out, voices all merging into one voice.
I know it's always a 50/50 chance but we both have been so convinced the transplant would go ahead. My mum has this growth 'angiomyolipoma' I've been too scared to type the word into google! I know its not cancer, but is there anyone in this wonderful 'kidney community' could explain the meaning of this? I honestly haven't slept last night, I have a huge headache and just feel the world had collapsed on me. Not wanting to feel sorry for myself, I thought I would turn to here as I know from previous experience there is a wealth of knowledge on this forum.
Thank you