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Postby Solo » Thu Feb 18, 2016 11:44 am

Hi . I have just got back from my Urology appointment and the consultant has decided to remove my left kidney . He said " even though removing this kidney will leave you in a very brittle state I feel there is no alternative but to remove the kidney " . I don't know what he means by Brittle ?

I am to have some tests first and then the op will go ahead. Please can someone give me some links about Nephrectomy

I feel very shell shocked and I can only remember bits of what was said

Posts: 23
Joined: Thu Nov 26, 2015 11:13 pm

Re: Nephrectomy

Postby wagolynn » Thu Feb 18, 2016 5:30 pm

Hello Solo,

It is always difficult to think when you are given news like that, this link may help a bit

When you have read the link, I think the best thing to do is to write down the questions you will have. Contact the consultants secretary, and explain you have some urgent questions could they arrange an appointment with someone who can answer them for you. You will be very unlucky if this should fail, if it doe's, go to see your GP with the list.

Information from the consultant or the staff who know your case is always better than stuff turned up on the internet.

Best wishes.
Posts: 1156
Joined: Thu May 23, 2013 2:49 pm

Re: Nephrectomy

Postby Grey » Fri Feb 19, 2016 3:39 pm

Many of us have had it done, it is a biggish op but we have all survived. Cheer up it is always for the better. They removed one of mine so could have room for a transplant that followed. Let me tell you, would do it ALL AGAIN to reach where am now.
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Posts: 450
Joined: Wed Mar 30, 2011 12:04 pm
Location: Chester

Re: Nephrectomy

Postby Rik » Fri Feb 19, 2016 4:46 pm

Hi Solo ...
sorry you are feeling a wee bit shell shocked ...
its never easy when they tell you something you weren't expecting to be thrown into the conversation ...
I think ... :shock: (yes ... it does happen on rare occasions!! :roll: ) ... that when the Dr said brittle ... they meant fragile ...
your feeling crap now ... and you will feel more crap after ... :?
but you will start to feel things are getting better eventually ... :wink:
Posts: 1715
Joined: Wed Apr 21, 2004 10:29 am
Location: West London - UK

Re: Nephrectomy

Postby Solo » Sat Feb 20, 2016 2:11 pm

Thank you all for the replies and the links .

The consultant has made an appointment for me to see the Specialist Renal Nurse on Monday to help talk me through a lot of what is going to happen . I will tell her about the forum and how supportive you all are too
Posts: 23
Joined: Thu Nov 26, 2015 11:13 pm

Re: Nephrectomy

Postby chrisb » Sat Feb 20, 2016 3:17 pm

I have had both my kidneys removed because they were huge and would not have left room for a transplant. They had failed anyway so I was carrying them around for nothing. Feel much better now and I have got my waist back which can't be bad☺
Posts: 273
Joined: Thu Jul 19, 2012 4:57 pm
Location: gloucestershire

Re: Nephrectomy

Postby Tibbs » Wed Feb 24, 2016 10:57 pm

It is a shock, but it's a relatively straightforward, if major, op. They didn't even stitch my wound sites, they glued them up and you can, 2 years later, barely see the scars.

I had some fairly major pain issues post-op, but within a few days I was up & about and back to work after 3 weeks off.
26/11/12 - Live donor transplant from my dad
6/1/13 - Discharged - Rejection episode over
7/1/13 - Getting on with life
24/9/13 - Left Radical Nephrectomy of Native Kidney due to cancerous tumour
14/10/13 - Back to work, getting on with life
Posts: 1082
Joined: Wed Nov 30, 2011 11:59 am

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