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8 months post transplant hair badly thinning

Posted: Wed Jan 06, 2016 5:06 pm
by sporti
Hi

Anyone have/had this problem with hair thinning so it's now very noticeable. Anything I can do? It's the immunosuppressants apparently. Thank you.

Re: 8 months post transplant hair badly thinning

Posted: Wed Jan 06, 2016 8:59 pm
by MandyV
Which ones are you on? If you do a search of previous posts almost everyone notices it but my neph told me it was also a reaction to the trauma of the surgery etc and I seem to remember it resolved itself by the one year mark ... Doesn't mean it wasn't upsetting at the time though :(

Re: 8 months post transplant hair badly thinning

Posted: Wed Jan 06, 2016 10:37 pm
by sporti
Hi

Prograf which is the worst for hair loss apparently and Cellcept and Prednisone. 4mg Progrsf twice a day 2,000 mg Cellcept per day and 5mg Pred. I know there's far far worse things could happen but right now it makes me feel self conscious. I will do a search never thiught if that! Plus I had treatment for NHL so yes trauma I can see that being another reason. Thank you

Re: 8 months post transplant hair badly thinning

Posted: Thu Jan 07, 2016 3:52 pm
by SKM23435
Hi Sporti,

I gather it's a really common problem.
I had it too. Thought to be a mixture of the Tacrolimus and the "bodily stress" of the transplant. I have really thick hair and started to loose handfulls at about 4 months. It continued for about 2 months and has stopped falling out now. I think it's starting to re grow now. I did search this site and it did put my mind at rest.

Hope everything is going well otherwise.

Best wishes
Sue

Re: 8 months post transplant hair badly thinning

Posted: Fri Jan 08, 2016 7:03 pm
by MidgeMan90
Yep.

I am now nearly 5 years post transplant but my hair has been thinning for the entire time really. Such a shame when I had such luscious, thick locks :lol:

Currently on 3.5mg Advagraf and 5mg Pred.

Although many people report it to stop, my just continues to rumble on :(

Re: 8 months post transplant hair badly thinning

Posted: Mon Jan 18, 2016 4:11 am
by sporti
Thanks everyone. Midgeman sorry yours is still rumbling on as you're not on that much med. Have they given you a reason? I've started to take Biotin.

Re: 8 months post transplant hair badly thinning

Posted: Mon Jan 18, 2016 9:25 am
by MandyV
Sorry , meant to come back on and say I am only on Prograf but my hair is completely back to normal - my hair is quite fine but I have lots of it so was very self conscious when it thinned so much, but hopefully you will find the same. I didn't do/take anything to help this.

Re: 8 months post transplant hair badly thinning

Posted: Fri Jan 22, 2016 2:02 pm
by Thumps
My hair fell out in clumps for the first year - after three years it was back to normal and now I can't tell the difference :)