Can it get any worse

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AmandaClare
Posts: 658
Joined: Tue Sep 18, 2007 1:58 pm
Location: London

Re: Can it get any worse

Post by AmandaClare »

Amazing. What a turnaround.

x
Alports Syndrome
Dialysis 1986, aged 14
Transplant 1988, still going strong!
Baby boy 2010
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Tibbs
Posts: 1081
Joined: Wed Nov 30, 2011 11:59 am

Re: Can it get any worse

Post by Tibbs »

Brilliant! You may need to change the title of this thread now. ;)
26/11/12 - Live donor transplant from my dad
6/1/13 - Discharged - Rejection episode over
7/1/13 - Getting on with life
24/9/13 - Left Radical Nephrectomy of Native Kidney due to cancerous tumour
14/10/13 - Back to work, getting on with life
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sporti
Posts: 355
Joined: Fri Aug 25, 2006 7:51 pm

Re: Can it get any worse

Post by sporti »

UPDATE. Guess what everybody I've had my kidney transplant yesterday. My EGFR is 70%!!! It was 9%. So emotional. My donor is doing so well he has left hospital already! I've also started the regime for my immunosuppressants plus two extras for the non Hodgkin's lymphoma. Thank you Mount Sinai Hospital New York. There are no words for my donor or any donor. I can't think of any other ways to say thank you. I bought him a live kidney donor t shirt and mug and I got the recipient t shirt.
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Chris In Trowbridge
Posts: 96
Joined: Fri Jan 03, 2014 10:46 am

Re: Can it get any worse

Post by Chris In Trowbridge »

So happy for you, you deserve your new kidney.
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AmandaClare
Posts: 658
Joined: Tue Sep 18, 2007 1:58 pm
Location: London

Re: Can it get any worse

Post by AmandaClare »

Wow. Thrilled for you and very glad the kidney got to work immediately. Keep us posted x
Alports Syndrome
Dialysis 1986, aged 14
Transplant 1988, still going strong!
Baby boy 2010
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Tibbs
Posts: 1081
Joined: Wed Nov 30, 2011 11:59 am

Re: Can it get any worse

Post by Tibbs »

Amazing, that's such great news!

I hope everyhing continues to go well with you and your donor. :)
26/11/12 - Live donor transplant from my dad
6/1/13 - Discharged - Rejection episode over
7/1/13 - Getting on with life
24/9/13 - Left Radical Nephrectomy of Native Kidney due to cancerous tumour
14/10/13 - Back to work, getting on with life
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AmberH
Posts: 33
Joined: Wed Feb 26, 2014 9:05 am

Re: Can it get any worse

Post by AmberH »

Brilliant news!
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Grey
Posts: 450
Joined: Wed Mar 30, 2011 12:04 pm
Location: Chester

Re: Can it get any worse

Post by Grey »

Fantastic...I go in on Monday for my transplant on Tuesday. Holding thumbs !
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
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Duker5
Posts: 200
Joined: Wed Apr 25, 2012 4:44 am

Re: Can it get any worse

Post by Duker5 »

sporti wrote:UPDATE. Guess what everybody I've had my kidney transplant yesterday. My EGFR is 70%!!! It was 9%. So emotional. My donor is doing so well he has left hospital already! I've also started the regime for my immunosuppressants plus two extras for the non Hodgkin's lymphoma. Thank you Mount Sinai Hospital New York. There are no words for my donor or any donor. I can't think of any other ways to say thank you. I bought him a live kidney donor t shirt and mug and I got the recipient t shirt.
I read this and although I post very little I read the site fairly regularly and I just had to post when I read your above post as I simply smiled and thought good on you :) hope everything goes well for you from here on.
Grey wrote:Fantastic...I go in on Monday for my transplant on Tuesday. Holding thumbs !
And good luck for Tuesday Grey.
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Adam
Posts: 69
Joined: Wed Jul 27, 2005 11:31 am
Location: Southern England

Re: Can it get any worse

Post by Adam »

Congratulations! I wish you all the best for the future.
July 2008 - transplant - living related donor
April 2005 - dialysis - tunnelled neckline, then CAPD (15 months), then HD (left wrist AV fistula)
January 2004 - diagnosis - IgA Nephropathy
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chrisb
Posts: 275
Joined: Thu Jul 19, 2012 4:57 pm
Location: gloucestershire

Re: Can it get any worse

Post by chrisb »

Fantastic news Sporting and best of luck this week Grey :D
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chrisb
Posts: 275
Joined: Thu Jul 19, 2012 4:57 pm
Location: gloucestershire

Re: Can it get any worse

Post by chrisb »

PLEASE EXCUSE AUTO TEXT SPORTI :evil:
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Dixie1
Posts: 283
Joined: Mon Apr 15, 2013 4:19 pm

Re: Can it get any worse

Post by Dixie1 »

Wow Sporti! That's amazing!! To think where you were with all this just a few short months ago..... Fantastic news. :D
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sporti
Posts: 355
Joined: Fri Aug 25, 2006 7:51 pm

Re: Can it get any worse

Post by sporti »

It's a rocky ride with the blood platets but they are coming back. Kidney good. Been in hospital over a week now. Hopefully out Friday. New kidney is 1.1
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sporti
Posts: 355
Joined: Fri Aug 25, 2006 7:51 pm

Re: Can it get any worse

Post by sporti »

Hi just another update. This time about the non Hodgkin's lymphoma that I have which made a kidney transplant impossible anywhere except for Mt Sinai Hospital NY. I've had my transplant many ups and downs but par for the course. Yesterday I went to see the lymphoma oncologist at Sloane Kettering and it seems that I have no trace of NHL in my blood. All white cells and lymphocytes back to normal!!! I cried buckets! And my oncologist said it was the biggest gamble and he said that quite frankly he is amazed. I think I've helped somewhere with their research into this so that feels good!
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