Can it get any worse
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Re: Can it get any worse
Sporti this is incredible news! I'm so happy for you i think i could cry buckets too!
Re: Can it get any worse
Have to report that I'm being allowed back home this week. It's been 11 weeks and now I'm ready to leave Manhattan for my home in the mountains and lakes Yeahhhh!
Re: Can it get any worse
Good on you ! Country gal !
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Re: Can it get any worse
Great news sporti. Good luck!
Re: Can it get any worse
Update: Kidney tests every two weeks and now see Transplant Specialist once a month. Kidney working at .90 and if anyone knows what that is in egfr please tell me! I have tried the kidney calculators but they don't give me actual level. Just that it's over 60%. Oncology I now see every three months. Struggling with Prograf but otherwise all excellent x
Re: Can it get any worse
Every 3 months? I am supposed to be a vey high risk and II see them every 3 months. Too many years in the sun in South Africa, surfing fishing and sailing ! and just lazing about.
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Re: Can it get any worse
Hi Grey
Yes 3 months as lymphomas and non hodgkins lymphomas are not treated or staged the same way as other cancers. Totally different ball game x
Yes 3 months as lymphomas and non hodgkins lymphomas are not treated or staged the same way as other cancers. Totally different ball game x
Re: Can it get any worse
Had a check today, being referred to have a thing cut out on my right eye brow (small one) but more worrying being referred to the breast clinic for checking a new lump under my left nipple of all places. BREAST CLINIC with a bunch of woman, what next Mind you I have been rather partial to a nice breast or two in my life...what am I complaining about?????
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Re: Can it get any worse
Tried to send you pm Grey but it won't let me. That's a bummer. Good luck.
Re: Can it get any worse
Thanks !
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Re: Can it get any worse
In my ignorance had to look it up, "Lymphoma is a blood cancer, which appears as a solid tumour most commonly in the lymph nodes of the neck, chest, armpit or groin." That is why they keep feeling under my arms and back of my knees !
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Re: Can it get any worse
Update October 2015?
Not sure if anyone is reading this still but hey ho may as well post!
For first time today my kidney transplant tests have all come in normal plus my oncology blood tests are still normal. My creatinine is a stable 1.0. some of the drugs will be brought right down in 3 weeks time. All is good. So ALBANY TRANSPLANT CENTRE NY you were wrong to throw me off your transplant list. Perhaps you should change your protocol and help more people in my situation instead of thinking of your success statistics.
Not sure if anyone is reading this still but hey ho may as well post!
For first time today my kidney transplant tests have all come in normal plus my oncology blood tests are still normal. My creatinine is a stable 1.0. some of the drugs will be brought right down in 3 weeks time. All is good. So ALBANY TRANSPLANT CENTRE NY you were wrong to throw me off your transplant list. Perhaps you should change your protocol and help more people in my situation instead of thinking of your success statistics.
Re: Can it get any worse
I'm still keeping up with you Sporti, I have to fess up that it's partly because of your NYC connection. Makes CKD sound more cosmopolitan. I know, I'm sad But hey ho
Re: Can it get any worse
Chin up gal !
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
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Re: Can it get any worse
Good results Sporti, well done.