Can it get any worse

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AmberH
Posts: 33
Joined: Wed Feb 26, 2014 9:05 am

Re: Can it get any worse

Post by AmberH »

Sporti this is incredible news! I'm so happy for you i think i could cry buckets too! :D :D :D
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sporti
Posts: 355
Joined: Fri Aug 25, 2006 7:51 pm

Re: Can it get any worse

Post by sporti »

Have to report that I'm being allowed back home this week. It's been 11 weeks and now I'm ready to leave Manhattan for my home in the mountains and lakes Yeahhhh!
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Grey
Posts: 450
Joined: Wed Mar 30, 2011 12:04 pm
Location: Chester

Re: Can it get any worse

Post by Grey »

Good on you ! Country gal !
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
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Dixie1
Posts: 283
Joined: Mon Apr 15, 2013 4:19 pm

Re: Can it get any worse

Post by Dixie1 »

Great news sporti. Good luck! :D
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sporti
Posts: 355
Joined: Fri Aug 25, 2006 7:51 pm

Re: Can it get any worse

Post by sporti »

Update: Kidney tests every two weeks and now see Transplant Specialist once a month. Kidney working at .90 and if anyone knows what that is in egfr please tell me! I have tried the kidney calculators but they don't give me actual level. Just that it's over 60%. Oncology I now see every three months. Struggling with Prograf but otherwise all excellent x
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Grey
Posts: 450
Joined: Wed Mar 30, 2011 12:04 pm
Location: Chester

Re: Can it get any worse

Post by Grey »

Every 3 months? I am supposed to be a vey high risk and II see them every 3 months. Too many years in the sun in South Africa, surfing fishing and sailing ! and just lazing about.
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
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sporti
Posts: 355
Joined: Fri Aug 25, 2006 7:51 pm

Re: Can it get any worse

Post by sporti »

Hi Grey

Yes 3 months as lymphomas and non hodgkins lymphomas are not treated or staged the same way as other cancers. Totally different ball game x
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Grey
Posts: 450
Joined: Wed Mar 30, 2011 12:04 pm
Location: Chester

Re: Can it get any worse

Post by Grey »

Had a check today, being referred to have a thing cut out on my right eye brow (small one) but more worrying being referred to the breast clinic for checking a new lump under my left nipple of all places. BREAST CLINIC with a bunch of woman, what next :shock: Mind you I have been rather partial to a nice breast or two in my life...what am I complaining about?????
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Top
sporti
Posts: 355
Joined: Fri Aug 25, 2006 7:51 pm

Re: Can it get any worse

Post by sporti »

Tried to send you pm Grey but it won't let me. That's a bummer. Good luck.
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Grey
Posts: 450
Joined: Wed Mar 30, 2011 12:04 pm
Location: Chester

Re: Can it get any worse

Post by Grey »

Thanks !
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
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Grey
Posts: 450
Joined: Wed Mar 30, 2011 12:04 pm
Location: Chester

Re: Can it get any worse

Post by Grey »

In my ignorance had to look it up, "Lymphoma is a blood cancer, which appears as a solid tumour most commonly in the lymph nodes of the neck, chest, armpit or groin." That is why they keep feeling under my arms and back of my knees !
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Top
sporti
Posts: 355
Joined: Fri Aug 25, 2006 7:51 pm

Re: Can it get any worse

Post by sporti »

Update October 2015?

Not sure if anyone is reading this still but hey ho may as well post!

For first time today my kidney transplant tests have all come in normal plus my oncology blood tests are still normal. My creatinine is a stable 1.0. some of the drugs will be brought right down in 3 weeks time. All is good. So ALBANY TRANSPLANT CENTRE NY you were wrong to throw me off your transplant list. Perhaps you should change your protocol and help more people in my situation instead of thinking of your success statistics.
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chrisb
Posts: 275
Joined: Thu Jul 19, 2012 4:57 pm
Location: gloucestershire

Re: Can it get any worse

Post by chrisb »

I'm still keeping up with you Sporti, I have to fess up that it's partly because of your NYC connection. Makes CKD sound more cosmopolitan. I know, I'm sad :? But hey ho :lol:
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Grey
Posts: 450
Joined: Wed Mar 30, 2011 12:04 pm
Location: Chester

Re: Can it get any worse

Post by Grey »

Chin up gal !
After a long time of waiting an anonymous donor has arrived in my life.
Words cannot express my gratitude to this lady and my paired exchange wife donor making it all possible
transplant 19th June 2015...Going very well mind you 2 years later
Top
Chris In Trowbridge
Posts: 98
Joined: Fri Jan 03, 2014 10:46 am

Re: Can it get any worse

Post by Chris In Trowbridge »

Good results Sporti, well done.
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