Kidney Patient Guide

Thanks Jooles. Lets hope you enjoy it and gives us a lovely review! We have been asked to do a sequel but need to make sure this one gets a lot of readers first:))

My apologies if you've tried to access this book and found something completely different. Amazon have really messed it up and put all our reviews onto someone else's book, a Jason Cooper, not Alan and Jan Cooper. Please check it out till you find it and more reviews are always needed. Many thanks. ...

I was refused DLA before PIP was the benefit. As a home haemo patient who requires the help of someone else to be able to dialyse safely, and understanding what they're documents state, I appealed. This was not pursued by the Benefits agency as I quoted their own documentation and they just coughed ...

Hi Collette, If you want to go away and be able to dialyse where you stay eg in a caravan, it would be very good. For home use its a smaller kit from the Fresenius but does take space. I find the annoying bits are the time it takes to prime approx 35 mins, the 7.5 hours to fill the dialysate sack an...

We now have a website. Please go to

TheStayingAliveBook.co.uk

Simple as that. It has the links of how to buy the book and also to Kidney Research UK website.

Please buy, share, review on Amazon and just enjoy this book. As Liz says, 'this delightful book', and more besides.

Many thanks
Jan

Thank you Liz xx

I also have cinacalcet and will hang onto my parathyroid for dear life! Not something to be undertaken lightly as then you have other medication for life.

I want to say a big thank you to everyone who has read this book or who is thinking about reading it. We now have more reviews. I thought our friends would be the only reviewers on Amazon, but that's not the case. We have lovely reviews from people who don't know us at all and that's really rewardin...

Thank you Lizbee. I hope you enjoy reading it as much as other readers are beginning to feed back to us. X

Hi Ruth, I'm in the SaTH area as well and have HHD using NxStage. If you would like to send me a message not on this open forum I may be able to help you with some of your questions. Jan

Thanks to Neil for putting this book onto the forum. The stories we have shared are all different and we have focused on what is positive as far as possible. We can't tell everyone's story, each kidney patient is different and their stories are different as well. We are getting good reviews like 'WO...

Hi there, it sounds like your mum is having a really tough time which must be so difficult for you. My understanding is that it is recommended that all patients need a minimum of 12 hours dialysis a week. From my own experience I found the machines used in the renal unit were leaving me completely w...

A very Happy Christmas to everyone and a healthy Happy New Year! X

This is the link! Thanks jman. I'm not good at getting the web address sorted.
Jan

Dear All,

Al James has written a trilogy for KRUK and the last story is now available on their new and updated website. All three stories are there and I think you will find them moving and inspiring. I have to say they have made me smile and shed a tear. Well worth a read.

Enjoy!