Search found 30 matches
- Fri Oct 19, 2007 12:15 pm
- Forum: The KPG Forum
- Topic: Thanks to the group and Update (good news!)
- Replies: 1
- Views: 2927
Thanks to the group and Update (good news!)
I haven't visited the Board for a long time - lots of family problems intervened including Altzheimers, depression, 3 deaths, house clearances etc etc etc. But I have just had great news and wanted to thank members in the past who have provided support and answers when I needed them most. To recap, ...
- Fri Jul 15, 2005 9:21 am
- Forum: The KPG Forum
- Topic: Increased Potassium - advice please
- Replies: 19
- Views: 47410
high potassium
Thanks Elaine & Ruth, good to hear from you all this happened whilst I was in Devon moving a frail relative 200 miles to a care home near us so am getting info second hand from husband who is with Rob. Biopsy went well but have just learned his kidney function is now 50% (from 100% and doing wel...
- Thu Jul 14, 2005 10:28 pm
- Forum: The KPG Forum
- Topic: Increased Potassium - advice please
- Replies: 19
- Views: 47410
Increased Potassium - advice please
Hi Folks My FSGS 15 yr son was doing really well on Cyclosporin for 2 years until beginning of May (exams time) when protein / kinase ratio was raised. First simvastatin for cholesterol was stopped, then cyclo changed to Prograf / Tacrolimas. After this the potassium started increasing to 7.1 involv...
- Mon Jun 06, 2005 11:51 pm
- Forum: The KPG Forum
- Topic: Cyclosporin changed to Prograf (in Cheltenham)
- Replies: 7
- Views: 12543
- Mon Jun 06, 2005 8:58 am
- Forum: The KPG Forum
- Topic: Cyclosporin changed to Prograf (in Cheltenham)
- Replies: 7
- Views: 12543
Prograf / Renal care in Cheltenham
Hi Ruth Robin was only diagnosed 2 yrs ago with FSGS and fortunately has been well, so no transplant as yet and still has 100% function but was resistant to prednisolone and so went immediately onto Cyclosporin. His consultant is Dr Jan Dudley of Bristol Children's renal unit as he is only 15 but Dr...
- Sun Jun 05, 2005 10:25 pm
- Forum: The KPG Forum
- Topic: Cyclosporin changed to Prograf (in Cheltenham)
- Replies: 7
- Views: 12543
Cyclosporin changed to Prograf (in Cheltenham)
Hi Folks I see Ruth from Cheltenham is / was online as I logged on, seems strange to know someone else on the Forum must be within 10 miles of me at the moment. It makes this community seem closer and not just virtual. I haven't logged on in a while. Lots (mostly bad news) happening here but my two ...
- Mon Mar 21, 2005 2:56 pm
- Forum: The KPG Forum
- Topic: Cold Remedies
- Replies: 8
- Views: 14517
Cold remedies
How about trying some homeopathic remedies? Echinacea in liquid form is a fast acting remedy I give my children (both with KD) when they start with a cold. I use 20 - 30 drops in water for a 4 - 5 day period. Echinacea boosts the immuno system and our neph approved it for short periods. I also have ...
- Mon Dec 13, 2004 1:57 pm
- Forum: The KPG Forum
- Topic: UK: Sunday Express article followup
- Replies: 4
- Views: 8302
[quote]PS have u seen articles in BKPA Silver Lining from kids & Dr Nurses from Bristol
No Elaine, I looked on the web site www.britishkidney-pa.co.uk web site but couldn't see what you referred to, or is it a newsletter?
regards
BrendaM[/quote]
No Elaine, I looked on the web site www.britishkidney-pa.co.uk web site but couldn't see what you referred to, or is it a newsletter?
regards
BrendaM[/quote]
- Mon Dec 13, 2004 9:59 am
- Forum: The KPG Forum
- Topic: UK: Sunday Express article followup
- Replies: 4
- Views: 8302
UK: Sunday Express article followup
Hi Folks well there was a follow up article, on page 50, and I don't think any of the info I or others provided was used but it doesn't really matter because in the last week, and due to the prominence of the front page article (and pages 2 and 3) about the twins last week over 21,000 people registe...
- Sat Dec 11, 2004 9:10 am
- Forum: The KPG Forum
- Topic: URGENT UK only: news story planned re opt-in donors-info
- Replies: 9
- Views: 17700
Sat morning update Many thanks to all of you who contacted me privately and agreed to talk to the journalist. I spent several hours collating notes, tel numbers, stories etc on Thurs and hope she contacted some of you. I completely understand if you hadn't wanted to speak out - I gave our family's s...
- Wed Dec 08, 2004 11:21 pm
- Forum: The KPG Forum
- Topic: URGENT UK only: news story planned re opt-in donors-info
- Replies: 9
- Views: 17700
UK press story re opt-in donors
It is Wed night not Tues of course, sorry to confuse anyone
thanks for the replies already, I will report back if we can bring this story together in time.
regards
BrendaM
thanks for the replies already, I will report back if we can bring this story together in time.
regards
BrendaM
- Wed Dec 08, 2004 7:48 pm
- Forum: The KPG Forum
- Topic: URGENT UK only: news story planned re opt-in donors-info
- Replies: 9
- Views: 17700
URGENT UK only: news story planned re opt-in donors-info
URGENT Hi Folks Tues 7.45pm Re the story in the Sunday Express last week (5th) I have been in contact with the journalist who is willing and KEEN to do a follow up story but needs case histories to quote, preferably concerning children needing new organs (sorry but that grabs the public's attention ...
- Mon Dec 06, 2004 12:48 pm
- Forum: The KPG Forum
- Topic: UK newspapers Lead Story re Kidneys / organ donation
- Replies: 1
- Views: 4417
UK newspapers Lead Story re Kidneys / organ donation
Hi Folks I was expecting to see some reaction here today about the lead item on front of UK's Sunday Express paper of yesterday about a family in Wiltshire with twin boys with kidney disease and both deperately needing a transplant. Mum could donate a kidney ..... but to which one? I stood in superm...
- Sun Nov 14, 2004 8:36 am
- Forum: The KPG Forum
- Topic: Question for transplant patients
- Replies: 6
- Views: 11833
Pains
Hi Ruth no words of wisdom I'm afraid but as another Cheltenham member I am thinking of you and hoping all goes well. Best wishes BrendaM PS Perhaps when our time comes for transplants (2 children affected) I could ask your advice on local facilities? (although I pray it is far off) PPS we are fight...
- Mon Nov 01, 2004 11:52 am
- Forum: The KPG Forum
- Topic: grapefruit juice
- Replies: 22
- Views: 41987
Grapefruit juice
Anyone on cyclosporine should have been told by their neph that they should NOT to drink it within a few hours of taking the drug as part of the initial premed run through it says as much on our info leaflet in the pack. We avoid it totally just in case
regards
BrendaM
regards
BrendaM