Kidney Patient Guide

I have experience in the NHS Complaint Procedures and the "independent" and "imparial" Ombudsman http://www.medicalneglect2.webs.com/ http://www.medicalneglect.webs.com/ Unless the complaint is made through the formal procedures then it will be dealt with internally and then forg...

Hello marier you can be sure that you won't get justice let alone answers from the system - the NHS Complaint Procedures or the Ombudsman - and politicians are reluctant to introduce a legal duty of candour among the medical professionals. So one's only friends are the public. Given that kidney pati...

It may be an idea if the association stateS at the beginning just what it will and will not do? If it says that it will abandon a member when that member is in dispute with the hospital or one of the doctors then, at least, everyone knows where they stand. I stood alone against the might of the esta...

Doctor - Tell Me the Truth Every year up to 98,000 Americans die as a result of the medical treatment they receive. Professor James Reason discovers how doctors who have admitted their mistakes have helped patient safety. He hears from Rick Boothman and Darrell Campbell at the University of Michigan...

Bigbuzzard I attended meetings too and I know what you are saying but all it takes is for the members to vote to put a question to the renal department about the concerns of one of their members and to ask for a response. The next stage depends on the response and what the members ask of their commi...

Kidney Patients Association My wife and I were members of the local association. These are generally set up and organised by kidney patients and families/supporters and set up as charities. They are only as good as their members with campaigning, periodic meetings and organised charity and publicity...

thank you Keith and concerned parent I am perplexed that so many patients and members of the public are so unconcerned about the lack of candour in NHS. Should they or their families suffer iatrogenic damage or death as a result of negligence or medical errors then they or their bereaved relatives a...

If things go wrong as they sometimes did with my wife's treatment and they did on her final dialysis and earlier, what can a patient or patient's relative expect from the doctors and medical staff? European Court of Human Rights in May 2002. In its judgment, the court made it clear that at present t...

Andy the DNAR was implemented without hesitation because they believed her death was inevitable and for the same reason they did not bother with ECG. In the end it was pericarditis that killed her. The nephrologist said later that surgery to deal with pericarditis would have prolonged her life for o...

Hi Amanda my wife did not get that advice when she began dialysis 1990 and I suppose, at that time, not much was known then about the dangers. She had a bad dose of peritonitis in 2004 that prevented her continuing PD and, simultaneously, while in hospital had problems with constipation. That should...

Hi cshimp1, welcome. I don't visit the forum much since my wife died 5 years ago. I still don't have answers to my questions and the subject of sclerosing peritonitis does not seem to be of much concern to the majority in this forum. I don't know the rate of incidence of this 'complication' but the ...

I don't visit this site too often but thanks to all who contributed to this topic. Today Beth and I should be celebrating our 27th wedding anniversary but instead it is the 5th anniversary of her death. She said to me this morning 5 years ago "I am getting better". A few hours later, she w...

I would be pleased to learn more about this drug (tamoxifen) in its treatment of EPS/SP. Is any membewr here using it? And for how long? Other than surgery what are the treatment methods? What is the incidence rate of EPS among dialysing patients? Any other groups/websites that I could obtain this i...

Hello Kipper mistakes are not so uncommon but one needs to learn how to recognise them. Beth had many during her 17 years of dialysis but never made an issue of them because of gratitude to NHS in keeping her alive and also in fear of antagonising those responsible for her care. The Ombudsman is loo...