Search found 69 matches

by johnsor
Wed Dec 15, 2010 2:04 pm
Forum: The KPG Forum
Topic: Vitamin D supplementation
Replies: 8
Views: 6978

I did not have my VD levels measured. I needed a tooth implant a couple of years ago and when they went to take the temporary post out of the area the implant was attached to the jaw bone, my jaw bone fractrured and had to start all over again. My sister in law is PHD in organic chemistry. She told ...
by johnsor
Wed Dec 15, 2010 1:54 pm
Forum: The KPG Forum
Topic: Surgery after transplant
Replies: 6
Views: 4849

I've had a couple of transplants and between transplants I had several surgeries done. Access to juggler vein, angiogioplasty and dental implants. I have know people who have had hip replacements after their TX. Not a big issue, unless the surgery is in the area of the transplanted organ.
by johnsor
Mon Jun 28, 2010 7:23 pm
Forum: The KPG Forum
Topic: British transplant games
Replies: 19
Views: 13354

The States have their TX Olympics at the end of July and first part of August in Madison, Wisconsin. It will be my first time at the U.S. games. Little bicycling and golf will be my attempt. Hope things go well for you at the British games.
by johnsor
Fri Oct 23, 2009 1:08 am
Forum: The KPG Forum
Topic: Swine flu vaccine
Replies: 35
Views: 23738

My TX center recommended both H1N1 and seasonal flu jab. They also said not to take both at the same time. Wait a week or two between jabs. I was able to get one of the last seasonal doses in the area, but unable to get the H1N1.
by johnsor
Thu Apr 30, 2009 7:11 pm
Forum: The KPG Forum
Topic: Blood in urine - could it be caused by stent?
Replies: 1
Views: 3537

If the antibiotics don't take care of the problem, it could be a stent issue. I had a stent left in a little too long after transplantation and it began irritating the bladder. It was very painful and I was incontinent. Once they pulled the stent out things were much better in a few days. There firs...
by johnsor
Thu Apr 09, 2009 8:16 pm
Forum: The KPG Forum
Topic: questions for transplantees
Replies: 5
Views: 4054

Just know things will get better. A couple of things come to mind. One is your hematocrit levels (oxygen carrying ability) are generally lower several months to a year after surgery. Until it gets back to 40+, you will probably not have the stamina you did before surgery. Secondly, sometimes you wil...
by johnsor
Tue Mar 24, 2009 2:43 pm
Forum: The KPG Forum
Topic: deafness attributable to a medication
Replies: 6
Views: 5306

I had to get hearing aids a couple of years ago due to hearing loss. I remember right after I went on tacrolimus in 1996 I started getting tinnitus (ringing) in my ears. I asked the TX center doc if there was a relationship between prograf and the ringing. The TX center said no. I don't believe that...
by johnsor
Tue Mar 03, 2009 9:43 pm
Forum: The KPG Forum
Topic: BK virus
Replies: 1
Views: 2891

Polyoma BK virus

Yes, I have had the bk virus for several years. The level of the virus never got to a high count after my tx. In my particular case, the tx center took me off mycophenolate, but left me on tacrolimus and predinsone. By taking me off mycophenolate, my immune system was able to counter the virus and v...
by johnsor
Fri Oct 10, 2008 12:31 am
Forum: The KPG Forum
Topic: Flu Jab
Replies: 17
Views: 13436

I have always gotten a flu shot. My tx center recommends them. Though I am aware of a prestigious tx center that does NOT recommend the shot for their tx patients. In theory, the shot has the potential (slight is it might be) to "trigger" a rejection episode. I'm not sure one could prove o...
by johnsor
Fri Oct 03, 2008 8:55 pm
Forum: The KPG Forum
Topic: lisinopril side effects
Replies: 12
Views: 24244

While on Lisinipril I frequently coughed. Not just any cough, but like I was trying to cough up a "cow". No longer on it, use cozaar / metropolol now.
by johnsor
Wed Apr 23, 2008 2:56 am
Forum: The KPG Forum
Topic: Do your employers know about your kidney issues?
Replies: 11
Views: 9840

When I found out I was in kidney failure, I had 5% function remaining and had to have surgery for dialysis access immediately. This made it difficult, if not impossible, to be discrete about my circumstances with my employer and coworkers. It has worked out very well, but if I had it to do over agai...
by johnsor
Mon Apr 21, 2008 1:48 am
Forum: The KPG Forum
Topic: Question for those taking Tacrolimus
Replies: 40
Views: 32767

tacrolimus

First tx I took 4 mg./ day. The second tx I take 2 mg. day. It's interesting, my body adjusted differently to 2nd tx for same amount of prograf level.
by johnsor
Mon Apr 21, 2008 1:44 am
Forum: The KPG Forum
Topic: Let's play Dr House...
Replies: 34
Views: 26525

fluid around the kidney.

Hi Amit: Hope all is well. Your post brought back memories from almost 5 yrs. ago. I had a seroma (fluid build up around the tx) and it had to be tended to (surgery) three times before the fluid build up stopped. My creatinine went from .9 (U.S.) to 5.5 over a two week period. 5 years later it still...
by johnsor
Tue Dec 25, 2007 4:28 am
Forum: The KPG Forum
Topic: Drug to kill white cells before transplant
Replies: 10
Views: 9295

CAMPATH 1H

Not sure, but you might be referring to campath. I believe it is used in cancer treatments and was being used for preparation prior to tx via IV. I was given campath prior to my tx in May 2003 at the University of Wisconsin. UW had just started to use campath in early 2003 and I am fairly certain it...
by johnsor
Sat Aug 04, 2007 7:46 pm
Forum: The KPG Forum
Topic: Insurance question for those in the US
Replies: 14
Views: 15068

Hi Jen: There are many great points on this string which are very good, but would warn you not to ASSUME anything. Suggest you speak with your future employer and request that you be able to discuss your issues with your future employer's health care provider(s). Health care packages differ in cost ...