Search found 118 matches

by M3Riddler
Wed Feb 06, 2013 8:03 pm
Forum: The KPG Forum
Topic: NxStage
Replies: 45
Views: 59832

Re: NxStage

Brilliant news! I'm very pleased that the needling is going well as that's the thing I have greatest difficulty with as I heal up overnight. I still have to plug the holes and the other problem is that my artery/veins move around. My only consolation is that the staff can't do it either. Apart from...
by M3Riddler
Thu Jan 31, 2013 12:40 am
Forum: The KPG Forum
Topic: Needling Fistula Pain
Replies: 16
Views: 31210

Re: Needling Fistula Pain

Started to have my Fistula needled and i have to say it bloody hurts :( when i asked the nurse if there was anything available to numb the area first i was told to man up and it was something i had to get used to,i will be having two needles put in this week and am dreading it,the needles are bigge...
by M3Riddler
Thu Jan 31, 2013 12:36 am
Forum: The KPG Forum
Topic: Mega itching, very frustrating!
Replies: 8
Views: 13722

Re: Mega itching, very frustrating!

Anyone know what can be causing this? I know it's a symptom of CKD, but how can I help to alleviate it? It's getting quite bad where last night I couldn't sleep because I was itching all over! Also I just re-read the Losartan leaflet and it says on it, If you experience the following, stop taking L...
by M3Riddler
Fri Jan 18, 2013 9:50 pm
Forum: The KPG Forum
Topic: Steal syndrome
Replies: 6
Views: 8262

Re: Steal syndrome

There is a procedure called Miller Banding that is used to treat steal syndrome. I do not know anything about it other than know there is a procedure that can correct it.

Hope this helps..
by M3Riddler
Fri Jan 18, 2013 9:41 pm
Forum: The KPG Forum
Topic: Nephrologist Help Please
Replies: 2
Views: 5085

Re: Nephrologist Help Please

Many factors can determine your creatinine level. This includes if you are dehydrated even drinking too much fluid. As the other person stated, creatinine is also affected by muscle mass. Those with more muscle will tend to have a higher creatinine level. Do you take any supplements ? There are many...
by M3Riddler
Sat Dec 22, 2012 9:22 pm
Forum: The KPG Forum
Topic: NxStage
Replies: 45
Views: 59832

Re: NxStage

Hi M3R I have buttonholes but the dull needles still don't work. They tried without buttonholes a couple of days ago and I healed up very fast. That wasn't too nice an experience having cannulas inserted! Today they have upped the gauge to 14 and buttonholes are back. Even with buttonholes I have a...
by M3Riddler
Fri Dec 14, 2012 1:16 am
Forum: The KPG Forum
Topic: Blood transfusions and kidney transplants
Replies: 8
Views: 16895

Re: Blood transfusions and kidney transplants

Off the topic of your case, I think there are some interesting considerations about the whole issue of blood transfusions. I read that blood in a blood bank is kept for up to 40 odd days. It must therefore be possible to arrange that your own blood is take in the time building up to the op and kept...
by M3Riddler
Wed Dec 12, 2012 7:20 am
Forum: The KPG Forum
Topic: Blood transfusions and kidney transplants
Replies: 8
Views: 16895

Re: Blood transfusions and kidney transplants

It is true that transfusions can create antibodies. They can check to see the antibody level. There are also methods available that can help reduce the antibody level. How old are the twins now and when are they suspected to have the kidney issues?
by M3Riddler
Tue Dec 11, 2012 8:15 pm
Forum: The KPG Forum
Topic: NxStage
Replies: 45
Views: 59832

Re: NxStage

M3R Hi, yes by needling that is what I meant. I have no problem sticking the cannular into the arterial but the venous is in a very difficult position for me and keeps blowing for the staff. I want to do it myself and not rely on anyone else. Scarily my husband is keen to stick the cannulars into m...
by M3Riddler
Thu Nov 15, 2012 10:56 pm
Forum: The KPG Forum
Topic: NxStage
Replies: 45
Views: 59832

Re: NxStage

jan4alan,

Have you ever considered cannulating yourself? In my opinion, most that stick the patients in center are anything but cannulation experts. The best person is you!! Many centers in the US are now teaching patients to stick themsevles - especially if they will be doing home hemo.
by M3Riddler
Wed Nov 07, 2012 10:04 pm
Forum: The KPG Forum
Topic: Any ideas/advice/help please
Replies: 5
Views: 5933

Re: Any ideas/advice/help please

Sweetie, A few questions. What is your husbands hemoglobin? How is his Iron levels? ( you need normal iron levels for the epo to work) What is his creatinine and BUN ? ( these can cause some of the symptoms as well) My opinion is that your husband is not receiving enouph dialysis. If you are not rec...
by M3Riddler
Fri Nov 02, 2012 7:44 pm
Forum: The KPG Forum
Topic: Op Date/neckline/TX surgeon/heamo
Replies: 39
Views: 59584

Re: Op Date/neckline/TX surgeon

So things have moved on quickly after so much tie spent waiting. Had calls today from the TX coordinator about meeting the TX surgeon on 23rd of Oct, which was a nice call. I had a call from my renal unit asking me to come in this friday (12th october) to have bloods taken, clotting bloods! All so ...
by M3Riddler
Thu Nov 01, 2012 10:54 pm
Forum: The KPG Forum
Topic: Home Dialysis Machine
Replies: 22
Views: 32687

Re: Home Dialysis Machine

TheCat2008, The amount of time and the number of days will be dertermined by you and your doctor. Everyone is different and this is something that the doc will go over with you. One thing to remember is that longer, slower dialysis is a lot gentler on the body than high blood flows. Remember, the ki...
by M3Riddler
Tue Oct 30, 2012 12:48 am
Forum: The KPG Forum
Topic: Low red cell count - TX in jeopardy!
Replies: 9
Views: 11903

Re: Low red cell count - TX in jeopardy!

We are not quite out of the woods yet .... the dialysis unit are giving him more antibiotics for an infection but we don't know what is infected ! Prob inside the permacath lines as they have been there since April and are not ideal as a long term thing. Fingers crossed they can get on top of it. I...
by M3Riddler
Tue Oct 30, 2012 12:45 am
Forum: The KPG Forum
Topic: is this normal
Replies: 2
Views: 3961

Re: is this normal

Luanna,

Hernias are very common with PD dialysis.