Search found 16 matches

by virginia
Fri Oct 13, 2006 8:13 pm
Forum: The KPG Forum
Topic: Blood Pressure
Replies: 8
Views: 7275

Hi. The doc's put me on 2 medications to keep my BP down to 125/75, (it was 140/90) although it is usually much lower than that. The last time I had a reading it was 110/60, I think. This makes me feel very dizzy a lot, even when I'm standing there doing nothing but I'm told I have to put up with it...
by virginia
Wed May 31, 2006 10:24 am
Forum: The KPG Forum
Topic: Your very worst day!
Replies: 24
Views: 21302

Hi all, I just wanted to make a short comment to Bear about "lurkers". I admit it...I am one of those people who visits the forum every day and never posts. I have kidney disease but am not on dialysis but enjoy reading the posts to gather information and learn as much as possible about th...
by virginia
Tue Sep 27, 2005 12:50 pm
Forum: The KPG Forum
Topic: odd symptoms-anemia?
Replies: 8
Views: 10354

Thanks for your replies. My creatinine clearance is 42 I believe. Somebody told me that if I fold my lower eyelid down the area will be white if I'm anemic. Honestly, it's hard to make a comparison because I'm not sure what it's supposed to look like anyway. I will try to get to my GP this week and ...
by virginia
Mon Sep 26, 2005 11:32 pm
Forum: The KPG Forum
Topic: odd symptoms-anemia?
Replies: 8
Views: 10354

odd symptoms-anemia?

Hello again all. I have been having some disconcerting symptoms lately and was wondering if anyone here has experienced similar. I have been exhausted and short of breath and my chest aches, but I am having real trouble getting to sleep even though I feel so bad. I have been trying to rationalise th...
by virginia
Thu Jun 30, 2005 8:08 pm
Forum: The KPG Forum
Topic: accupuncture??
Replies: 13
Views: 15658

Andy, Hi. I've had acupuncture for carpel tunnel syndrome and it worked out really well for me. It took about 6 weeks of treatment to clear it up, and I occasionally have to go back for top-up treatments when my wrists start to twinge a bit. The only other options for treatment at the time were surg...
by virginia
Wed Apr 27, 2005 9:50 pm
Forum: The KPG Forum
Topic: creatinine clearance and GFR
Replies: 0
Views: 5678

creatinine clearance and GFR

Hi..I have a quick question to ask you all as I have just been to my doc and, as usual, forgot to ask the important questions regarding the lab results he gave me. WHAT exactly is a creatinine clearance value of 42 in relation to GFR? I just started seeing a new dr. as my usual one moved away and th...
by virginia
Mon Apr 18, 2005 9:40 am
Forum: The KPG Forum
Topic: Urodynamics test
Replies: 6
Views: 14243

I had quite a few of thoses tests when I was a child due to my duplex kidney and reflux. My urologist always anaesthetised me for the insertion of the catheter because I was such a squeamish kid. Although I think it was probably just the thought of the procedure that was the actual problem. It's rea...
by virginia
Sun Mar 20, 2005 10:48 am
Forum: The KPG Forum
Topic: Book on kidney failure
Replies: 8
Views: 11544

book

I ordered this book a while ago and found it really useful for explaining to me what happens through the various stages of the disease and what each medication is used for. It helped to answer a lot of questions when I was first diagnosed. Yes, it has a lot of info. on diet as well which will be use...
by virginia
Fri Oct 22, 2004 8:36 pm
Forum: The KPG Forum
Topic: Confused about FSGS!!
Replies: 15
Views: 44115

Hi again. My doc has never put me on any type of steroid at all. He decided against a biopsy as one kidney is very small and scarred and the other is only barely functioning.....so he's guessing on the fsgs diagnosis as he says that's what usually happens to kidneys as a result of reflux scarring. B...
by virginia
Wed Oct 20, 2004 9:34 pm
Forum: The KPG Forum
Topic: BMP-7 human trial to begin in about a year!
Replies: 2
Views: 5802

oops...sorry...have just scrolled down and found the answer. I guess I"M impatient. :oops:
by virginia
Wed Oct 20, 2004 9:32 pm
Forum: The KPG Forum
Topic: BMP-7 human trial to begin in about a year!
Replies: 2
Views: 5802

Impatient,

Excuse my ignorance...but what is BMP-7?
by virginia
Wed Oct 20, 2004 9:28 pm
Forum: The KPG Forum
Topic: Confused about FSGS!!
Replies: 15
Views: 44115

feeling like poo

Hi. I have been reading through this topic and what you have been saying about feeling awful, even though your lab results don't reflect this. I have been having the same problems (I have FSGS, the dr.'s think. 50% function). I am not on a kidney diet but I am sure food has something to do with the ...
by virginia
Sun Sep 26, 2004 1:34 pm
Forum: The KPG Forum
Topic: sulpha allergy and hydrochlorothiazide
Replies: 1
Views: 4722

sulpha allergy and hydrochlorothiazide

Hi everyone! I just wanted to ask if anyone here is allergic to sulpha and taken thiazide diuretics successfully? I am severely allergic to sulpha (needing adrenalin injection) and had been prescribed a thiazide diuretic, which is in the same drug family. I looked this prescription up on the interne...
by virginia
Thu Sep 02, 2004 2:20 am
Forum: The KPG Forum
Topic: Rachel from NY (now the Saga has Ended thread)
Replies: 101
Views: 152603

My very best wishes and prayers for Rachel, the little prankster, G and the entire family. What a very worrying time. I am sure she is a fighter and will get through this one.

Lots of Love and Positive Thoughts,

V. Louise (a.k.a. "WE" - for G)
by virginia
Sat Jul 24, 2004 2:18 pm
Forum: The KPG Forum
Topic: Elevated creatinine levels. Please help !!
Replies: 9
Views: 44087

It's amazing how often medical practitioners scare the pants off you unnecessarily. i can remember once my GP calling me on a Friday evening, when there was nothing much I could do about it anyway, after a 24-hour urine test to inform me that all was really really not good at all and I needed to see...