Kidney Patient Guide

Thank you for all your good wishes; a little update from me. It's now been a little over two weeks since coming home, and things seem to be going well. All my blood results are looking good. My weight has come down by around 8kg since the operation, as the excess fluid they pumped in has been remove...

Congratulations and thanks for the update. It feels strange that after seeing various people and undergoing lots of tests to get on the list, that we end up just waiting. The only contact I seem to have with my transplant centre is when I send in my blood sample every three months. So it's good to ...

I just wanted to share that I finally got "that call"! After 3 years 9 months of dialysis, I now have a transplanted kidney. I got called just as I started work, around 9.30am. Got transplanted in the early hours of the next day. I've just been released from hospital, yesterday. Quite a ro...

Hi JonnyFox, So how long before I start to feel better? If at all? The team in hospital reckon one or two months. Is that accurate? This will depend on your own situation, and if you have any other issues. It took me 3 months to get back to work after my collapse into renal failure. I had bad anaemi...

I didn't realise there was an option for home dialysis, that is amazing. I am assuming that I would be required to buy any equipment I would need? I assume you are based in the UK? Ask your unit about home dialysis. Mine set up everything for me - people were sent to put in a new floor lining, do t...

When I discovered I had kidney problems I was a model. That was put on hold once I had a nefrostomy tube and drain fitted for ten months whilst I awaited surgery. Its now looking likely according to my GP that dialysis is not too far away. I asked a few questions but mostly got the response of spea...

over christmas/new year, i managed to visit india for the first time in 4 years, taking the plunge with holiday dialysis there. i went for nearly 3 weeks, doing 10 sessions of dialysis. if you're wanting to visit india, get in touch with nephroplus.com they were very supportive and helpful. I filled...

Hi I am due to have an upper arm fistula fitted in the next few weeks, ready for if/when I need dialysis ( kid function 15% creatinine level 3.9). Is it painful and what after effects will I get and what usage of my arm will are lose. Regards I have an upper arm fistula. In the operation they only ...

I'm curious, do any of you self-needling on HD with buttonholes ever have those days when a needle just won't go in? I fairly regularly spend 10-20 minutes trying different angles etc, before succeeding. The other day, I was there 40 minutes, and had to give up and use a sharp. Two days later, the b...

thank you for the detailed post grey. this sounds like something all of us waiting for a transplant should be aware of. I don't think I had come across BKV before.

I hope you soon have things back under control.

kidney transplants again on tv. this time looking at the algorthm for matching up live donors - apparently it's called the "stable marriage" algorithm!

http://www.bbc.co.uk/iplayer/episode/p0 ... algorithms

What results do other FM's see on their Patient View results? I see my potassium, phosphorus and Hb levels mainly - I've put them into the table view for easy access. I also see urea, creatinine, eGFR, and a variety of others. The main result I'm interested in which isn't shown is HCT, which I need...

There is also another kidney transplant prog to look out for on the Beeb called Transplant and Trafficking (south west region) which tells the story of one of our regular newsreaders -Sabet Chowdry - who donated a kidney to his mother because she would have died before getting the call due to the l...

rheaybou wrote:but I had also been just as thirsty and will never get bored of water.

yes, quite. my family often asks why I don't take something more tasty, and it's hard to explain what a treat my two small glasses of water in the day are! Anything sweet, even a cordial, just isn't the same.

I've seen these. A word of warning that the second programme is more difficult to watch than the first. But it really brought the message home about the shortage of organs. I've now watched the second programme ( http://bbc.in/1UtIwbC ), and I see what you mean! They dealt with lung and heart patie...