Kidney Patient Guide

Hi Nicky,

I think you posted on the NKF board carers section before - a couple of people have left their email addresses there for you to contact them.

Your welcome to mail me at [email protected]

Best wishes

Amanda, What a hurtful thing to say to you. Some people have no idea! I would stop apologising for the mess - why should you? Or say something like - 'You'll have to excuse the mess, but as I have limited energy I prefer to prioritise looking after my child and my own health over gleaming sinks'. As...

Neal, Great to hear you're doing so well with your transplant. My husband is on home dialysis through the Ipswich renal unit but was told that nocturnal dialysis was not something they offered. Which unit did you get this through? From what I've read it look like a very good option for those on haem...

Bruno, Oh dear, what a nasty way of trying to get money out of people. You should report abuse/unsolicited email/spam to yahoo.com This page has the form with details they require http://add.yahoo.com/fast/help/uk/mail/cgi_spam and a link to click on to report abuse from yahoo.com addresses. Unfortu...

Does anyone have a good dietician? My husband's was particularly useless when he was diagnosed. Had a photocopied sheet aimed at her primarily older clients telling you which vegetables you could boil to have with roast meat. It was very depressing. I know the renal failure diet has to be restrictiv...

Debbie, Think you need to see a dietician. These pages have some stuff on vegetarian renal diets:- http://www.ikidney.com/iKidney/Community/Pro2Pro/Dietitians/VegetarianRenalDietandPracticalApplications.htm http://www.kidney.ab.ca/kidneys/diets/tips/vegetarism.html - some good veggie protein cooking...

Have you ever read any William Gibson (Neuromancer, Virtual Light etc)? He coined the phrase virtual reality and writes science fiction/cyberpunk novels. You might like Robert Rankin if you like the Pratchett books, the Brentwood Triangle trilogy was funny. For some deeper sci-fi fantasy try Phillip...

Well it's a risk you don't have to take - you can get quite nasty infections and your immune system is lower due to post-transplant drugs. If you have to do it wash the site regularly with antiseptic or at least salt water until it is properly healed- and be careful of where you get the piercing don...

My MP wasn't on the list so I guess he didn't even bother voting.. I'd like at least to have a system where my consent (being registered on organ donor database and carrying a donor card) meant that they would take my organs, rather than still consulting my relatives. I know they would be in favour ...

You could also try the post office - they do cover existing conditions - my husband got insured with them post transplant for a trip to Australia and had cause to use the insurance as he had gallstones, and very severe pain when we reached Singapore on the way back. The cover was very good indeed. W...

Hal/Borris, I think its terrible what those parents went through and they were right to complain about it. However I dont know what they hope to achieve by carrying on with this issue, which as far as I'm aware is no longer an issue as hospitals policy has changed and the same thing should not occur...

Ruth, The Organ Donation (Presumed Consent and Safeguards) Bill means that the law would be changed to presume consent, so you would have to register instead that you [i]did not[/i] want your organs available for transplant. At the moment we have a system where we are encourage to register if we d[i...

Brenda, It was on radio 4 today programme, apparently Labour party will be voting against it because it will cost too much to setup infrastructure. You can listen again by going to:- http://www.bbc.co.uk/radio4/today/listenagain/ram/today2_organ_20040624.ram I wrote to my MP urging him to ignore the...