Search found 8 matches

by HeatherC
Mon Jul 14, 2014 10:47 pm
Forum: The KPG Forum
Topic: Bringing creatinine down?
Replies: 13
Views: 24974

Re: Bringing creatinine down?

Thats fine, i try and drink 1.5/2 L a day, but my doctor did tell me 3l+, but cant manage that. On a side not, i am not getting email alerts to my replys, anyone else having this problem ? Ditto. My doctor told me 3L+ too. After the transplant I could do that, for a few years. The only downside to ...
by HeatherC
Sun Jul 13, 2014 7:38 pm
Forum: The KPG Forum
Topic: Bringing creatinine down?
Replies: 13
Views: 24974

Re: Bringing creatinine down?

Chris In Trowbridge wrote:Heather, how much do you drink a day you think ?
I try to do 1-2 litres a day (I always use bottles to measure how much I drink and refill them from the tap). But then I also drink about 2 cups of tea a day as well so I guess it can be between 2-3 litres a day.
by HeatherC
Sat Jul 12, 2014 9:12 pm
Forum: The KPG Forum
Topic: Bringing creatinine down?
Replies: 13
Views: 24974

Re: Bringing creatinine down?

Is 75/85 not a great level anyway for a TX patient ?, thought normal was 59 to 104 for a person that has no kidney problem ? and maybe just do some fast walking, doubt that will put on muscle. Yeah 75/85 is fine for a TX patient. My consultant, when he saw me a few weeks ago, said in passing a few ...
by HeatherC
Sat Jul 12, 2014 11:01 am
Forum: The KPG Forum
Topic: Bringing creatinine down?
Replies: 13
Views: 24974

Re: Bringing creatinine down?

General advice to tx patients is to exercise. I'm not sure it has much effect on creatinine unless you take up serious weights training to build muscle, and there are huge benefits in cardiovascular health. However I assume you're still underweight at 44kg so maybe wait until you've asked the docs ...
by HeatherC
Fri Jul 11, 2014 11:31 pm
Forum: The KPG Forum
Topic: Bringing creatinine down?
Replies: 13
Views: 24974

Bringing creatinine down?

Hi, I was just wondering if there was a way to bring creatinine down? I'm 9 years post transplant, and my creatinine is usually around 70-85, depending on how much I've drunk. Two years ago my creatinine was usually in the 50-70 range but since then I've put on weight from 37kg to 44kg. My cyclospor...
by HeatherC
Fri Jul 11, 2014 10:57 pm
Forum: The KPG Forum
Topic: What caused your kidney disease?
Replies: 32
Views: 88154

Re: What caused your kidney disease?

I was born with small kidneys but because they were working fine at birth they signed me off. I was also premature and had stopped growing in the womb, so the belief is my kidney failure was caused by my kidneys not developing properly in the womb but they had been sufficient enough to work well at ...
by HeatherC
Fri Jul 11, 2014 10:51 pm
Forum: The KPG Forum
Topic: Secondary hyperparathyroidism
Replies: 1
Views: 6726

Re: Secondary hyperparathyroidism

I suffered from secondary hyperthyroidism due to renal failure and the transplant failed to fix it, so I had to have the majority of the glands removed. I now only have 1/3 of one parathyroid gland left. The level is being controlled by Alphacalcadol twice a week and it has remained on the low end o...
by HeatherC
Fri Jul 11, 2014 10:45 pm
Forum: The KPG Forum
Topic: suggestion... how about introducing ourselves??
Replies: 946
Views: 2303150

Re: suggestion... how about introducing ourselves??

Hi, my name is Heather. I am 26 years old and I suffered chronic renal failure at 17. It came as a real shock as I went to my GP for a different reason entirely, but thanks to her she gave me a full blood test and two days later I had my diagnosis. Stage 5 kidney failure, Creatinine level at 1200 an...