Search found 10 matches

by Elemc
Fri Apr 03, 2009 9:31 pm
Forum: The KPG Forum
Topic: 27 years tonight
Replies: 7
Views: 5569

Already on board Bill...it's me - Lesley from England :D
by Elemc
Tue Mar 31, 2009 10:28 pm
Forum: The KPG Forum
Topic: 27 years tonight
Replies: 7
Views: 5569

27 years tonight

Hi everyone I don't visit often but tonight I have been reflecting on my very good fortune. My kidney was from a very generous and kind person who I never knew but who I think about a lot, particularly on nights like tonight. I was told that the kidney was not a particualry good match but I have no ...
by Elemc
Fri Feb 13, 2009 7:25 pm
Forum: The KPG Forum
Topic: Neotigason (aka Acitretin)
Replies: 2
Views: 3048

Hi Keith and Mike I still take azathioprine and prednisolone, 25mg and 6 mg respectively and have done for many years now. As I understand it azathioprine is not a drug that cause atheromas (plaque in the arteries) to form, so not sure about that question Keith? I've been taking Lipitor for a long t...
by Elemc
Thu Feb 12, 2009 12:39 pm
Forum: The KPG Forum
Topic: Neotigason (aka Acitretin)
Replies: 2
Views: 3048

Neotigason (aka Acitretin)

Hi everyone Is there anyone else taking this drug for skin problems associated with long-term use of immunosuppresives? I've just started on it and wonder how long it will be before I see any improvement? I've been lucky enough to have my kidney for 27 years (from an unrelated donor). Happy to anwer...
by Elemc
Sun Dec 09, 2007 6:56 pm
Forum: The KPG Forum
Topic: Anyone here at Guy's & St Thomas' ?
Replies: 6
Views: 6686

Yes hello :D I'm at Guys. I'm 25 years out from transplant and I guess that make 'me' about the same age as the KPA. I used to be involved in it in the early days of my transplant but as time passed and I went to the hospital less and less it all seemed to get rather remote and other things seemed t...
by Elemc
Tue Feb 06, 2007 6:15 pm
Forum: The KPG Forum
Topic: Lupus and transplant?
Replies: 8
Views: 9120

Hi Katie No, I didn't have any problems, lupus or otherwise after the birth. I was on observation in the hospital from 32 weeks and had Emma at 36 weeks due to what was identified as fetal distress. I was injecting myself with Heparin ( :shock: ) from quite near the start of the pregnancy - I'd had ...
by Elemc
Mon Feb 05, 2007 7:11 pm
Forum: The KPG Forum
Topic: Lupus and transplant?
Replies: 8
Views: 9120

Hi Katie Thanks for responding. My main question is - did your lupus go away completely once you had had the transplant? Mine seems to be a lot better but I still get a few aches and pains and migraines, and the exhaustion seems to be as bad as ever. Not sure if that's the end result of a lifetime o...
by Elemc
Mon Feb 05, 2007 5:05 pm
Forum: The KPG Forum
Topic: Lupus and transplant?
Replies: 8
Views: 9120

Lupus and transplant?

Hi

Has anyone here had a transplant as a result of lupus? I've had mine for over 20 years now and it would be interesting to swap stories...

Lesley
by Elemc
Wed Jan 31, 2007 2:09 am
Forum: The KPG Forum
Topic: So tired I can barely type: Brain fog?
Replies: 15
Views: 41612

Hi Pam I've had my transplant for a while too (coming up to 25 years) and I feel like I'm wading through glue a lot of the time. Feel tired with lupus anyway but you are right, most of the meds say 'can cause tiredness' so I suppose it's really no suprise that we do end up feeling more tired than ot...
by Elemc
Wed Jan 17, 2007 10:49 pm
Forum: The KPG Forum
Topic: Film & Book suggestions!
Replies: 14
Views: 9622

Hi I'm new here but I've been lurking for a while. :) You may have already seen them but these series take up quite a bit of time and are really gripping: Prison Break 24 Spooks If you are into quick wit and politics (American) try the West Wing - a massive series. Otherwise for something a little m...