Search found 11 matches

by jamiesav
Thu Nov 12, 2015 1:11 pm
Forum: The KPG Forum
Topic: Flu Jab Immune Supressed ?
Replies: 13
Views: 30939

Re: Flu Jab Immune Supressed ?

On a similar query. My son (2 years old) is getting the live nasal vaccine. Any one had any issues or been advised that a close relative shouldn't get the nasal version when someone in the family is immunosuppressed?
by jamiesav
Wed Sep 09, 2015 3:50 pm
Forum: The KPG Forum
Topic: bbc programme
Replies: 9
Views: 26020

Re: bbc programme

I thought it was a great programme!! I actually had my transplant at the Glasgow Western, the hospital in the show, just over a year ago. It was really bizarre seeing the all surgeons and nursing staff again in the environment. I certainty found parts of it quite emotional and really hard to watch a...
by jamiesav
Fri Feb 13, 2015 1:42 pm
Forum: The KPG Forum
Topic: 3d printing of organs
Replies: 3
Views: 8180

3d printing of organs

http://www.scotsman.com/news/health/3d- ... -1-3686872

Still sounds like a number of years / decades off but another small step forwards :D
by jamiesav
Thu Aug 14, 2014 12:37 pm
Forum: The KPG Forum
Topic: Dialysis while waiting for donor assessement?
Replies: 11
Views: 17509

Re: Dialysis while waiting for donor assessement?

Well, after a roller coaster ride waiting for my dad to go through nearly every test possible - his biopsy came back clear last week and we have been given a date for surgery this weekend!! After months and months of re-testing, its amazing how quickly things have now swung into motion. Its all beco...
by jamiesav
Fri Jun 27, 2014 12:10 pm
Forum: The KPG Forum
Topic: Dialysis while waiting for donor assessement?
Replies: 11
Views: 17509

Re: Dialysis while waiting for donor assessement?

Many thanks for all your replies. Its really helpful to hear other peoples experiences. Yeah, I wasn't sure whether they would go ahead with inserting a PD catheter if a transplant may be likely within the next 3/4 months or so. Sounds like its down to the particular doctor and your own timescales, ...
by jamiesav
Thu Jun 26, 2014 11:58 am
Forum: The KPG Forum
Topic: Dialysis while waiting for donor assessement?
Replies: 11
Views: 17509

Dialysis while waiting for donor assessement?

Afternoon everyone, I was just wondering at what stage most people needed to start dialysis? My dad is being re-assessed as a pre-emptive donor (He was previously given the go ahead 2 years ago after initial testing - but now needs reassessed). The re-assessments however, are throwing up a number of...
by jamiesav
Wed May 21, 2014 1:43 pm
Forum: The KPG Forum
Topic: Tx...Making the decision!
Replies: 8
Views: 11816

Re: Tx...Making the decision!

Hi Scott, Its amazing how similar a lot of our experiences have been. Headaches led to my diagnosis as well in Jan 2011 when I was 29. I was about 22% at the time and my dad volunteered to donate his kidney. We went through all the cross matching procedures 2 years ago and then I remained relatively...
by jamiesav
Mon Apr 28, 2014 12:52 pm
Forum: The KPG Forum
Topic: suggestion... how about introducing ourselves??
Replies: 946
Views: 2303156

Re: suggestion... how about introducing ourselves??

Hello. I have just come across the forum recently and noticed this thread. I'm 32 and was diagnosed with CKD in Jan 2011. Kidney function was 22% ish at the time but no real diagnosis of what caused my disease. Function has steadily been dropping and is now down to 12%. I'm in the very lucky positio...
by jamiesav
Mon Apr 28, 2014 12:36 pm
Forum: The KPG Forum
Topic: Problems with eyes?
Replies: 4
Views: 6369

Re: Problems with eyes?

Thanks for replies. I've been to the optician before about it and those tests seem to be fine. I'll mention to nephrologist when I see them later this week to see what they say.

Grey, I'm 32 btw. Also thanks for the story :lol:
by jamiesav
Fri Apr 25, 2014 12:34 pm
Forum: The KPG Forum
Topic: Problems with eyes?
Replies: 4
Views: 6369

Problems with eyes?

Hi all. I was wondering if anyone else has experienced problems with their eyes as their kidney function deteriorated? I'm at 12% function now and have developed blepharitis, which I can't seem to shift. It is manageable but I sometimes feel that my vision is blurry. As is always the case now, I nev...
by jamiesav
Tue Apr 22, 2014 2:06 pm
Forum: The KPG Forum
Topic: Skiing and other energetic activities!
Replies: 24
Views: 65093

Re: Skiing and other energetic activities!

Hi Dixie, I'm 32 and was diagnosed with CKD in Jan 2011 with an egfr of 22% and I'm now down to 12%. Over the past several years I have tried not to let this disease get the better of me and have continued to ski every year, run several charity races, played 5s, achieved my black belt in karate and ...