Kidney Patient Guide

Hi all Just wondering if any one out there has any advice regarding hair loss. I'm now one year post transplant and still on quite a high dose of Adoport 8mg twice a day, my hairs getting quite threadbare, just wondering if any of you out there have experienced the same and could recommend anything....

Hi all Hope you are well. I've just had my Catheter operation last Friday and am up and about just wondered how long it akes to heel as it were, it seems pretty quick at the mo as I'm currently typing this in my local library. A bit sore but apart from that good progress, just wondering if I can get...

Hi all Hope you're all doing well. Just wanted a bit of advice my GFR is 13 and I currently work full time for a bank. I'm finding work a bit to much at the moment and really need to cut down, but I think as I look quite healthy and look quite young still ( I get ID still and I'm 32! ) my manager se...

Hi There My GFR was 15 went they put me on the list. I think it was because from June 2014 to November my GFR went from 21 down to 18 then 15 but stayed at 15 for nearly a year and only last month went down 13. If I get that call again I will be a lot more prepared for what lies ahead and what to ex...

Hi hope everyone is well and is enjoying the weekend! So on the 28th January out of the blue I got that call, asking if I could go to St Georges hospital as they had a kidney for me I was absolutely stunned as my GFR is 13% at the moment and I've been on the waiting list for less that year. I turned...

Hi everyone Not going to lie I've had a few ( and I do feel bad for doing it ). I've seen the specialist today and my Potassium is 6.2. My consultant wants me to stop enalipril which helps my blood pressure to counter act the effects and of course stick to a rigorous diet. I'm not to sure. to top it...

Hi Johnylefox Totally understand where you're coming from as my GFR is 12 and I'm just wanting the inevitable to start, to get it over with. I think this disease affects people differently I've been lucky in a way as my GFR was 30 in 2010 and has declined very slowly but at a steady rate so I've had...

Thanks everyone for the replies.

Feel ok got home to hear a voicemail from a dietician apparently Potassium is high so have to sort that out tomorrow!

Once again thanks and all the best

Happy New Year Everyone So on Friday I was told that my GFR was 13 it' been hovering at 15 for nearly year now . It's finally broken through to Stage 5. I'm feeling ok and am on the usual meds EPO, Enalipril, Phosphate binders, Alficalcidol and now bicarbonate of soda. Got to see the Neph in two wee...

Hi Everyone Just wondering, I asked my mum and I was a difficult birth two months before I was born my mum was hospitalised due to toxaemia. I was born and was an ill child got diagnosed with tonsillitis (aged 5) then during the operation my blood pressure was sky high and my mum was told I would ha...

Hi Elfadan

No not yet I was told it will probably be within six months

Hope you'll had a good Christmas and New Year My GFR was 15 in December. I've had and an ECG and I'm healthy for a transplant and will being going on the list. In the last few weeks I've really been feeling quite unwell tingling in my fingers and aches in my ankles. I'm getting iron injections but s...

Thanks everyone for your feedback. :) The way my consultant explained it to me was that he would write to the dialysis unit ( luckily I live five minutes by car from a HD unit ) and my GP and they would send the medication to my surgery and the nurse would show me how to inject. I also recall that t...

Hi all Hope you're all as well as can be! I've been on this sight since January and I feel a bit bad as it's only now that I need a bit of advice that I'm writing my first post. I'm 31 years old and have had CKD since I was 5 years old diagnosed whilst having my tonsils out as for a healthy slim chi...