Kidney Patient Guide

Hi Duker, I'm still struggling a bit to be honest. Thankfully I see the Nephrologist on Thursday so I'm cautiously optimistic. I was started on Prednisolone in Oct (shortly after diagnosis) but continued to have 'flare ups' so the Nephrologist opted for MMF from January. I hope this helps... It seem...

There is an IgAN group on yahoo as well, but it's (a) quite tricky to wade through, with a funny layout, and (b)very American, a lot of their drugs are differently named, and they use different measurements for some things, and what with the whole private insurance stuff over there, it means that a...

Hi Duker, Thanks for taking the time to respond. My eGFR was just over 50 when diagnosed. It hadn't dropped too much when I saw the Nephrologist in Jan. I'll know more accurately when I see him again at the end of the month. However as I mentioned in my previous post, my symptoms are undoubtedly wor...

Thanks for the info. I see the nephrologist on 28th so I'm hoping for some further info then. Do you mind me asking at what stage you are with your kidneys? I'm so new to the disease its a really steep learning curve so I'm trying desperatelyto find out what I can.

Hi, please go easy on me - I'm very new to CKD and to this forum! Late last year I was diagnosed with IGAN at 35 years old. From what I understand I'm very fortunate as it was diagnosed very early and at the moment I still have very decent kidney function. Since that time I've searched the web for a...