Search found 179 matches

by marier
Tue May 07, 2013 8:22 pm
Forum: The KPG Forum
Topic: how can you loose weight on steroids
Replies: 12
Views: 26921

how can you loose weight on steroids

I'm almosf six months post transplant and being a gussi pig, I've put two stone on due to the prednisolone. Has anyone lost weight on steroids and if so, how did you do it. I've tried to stick to 1000 calories pet day. It worked for two wees but I'm heavier this week than I was last week.
by marier
Tue Feb 26, 2013 10:40 pm
Forum: The KPG Forum
Topic: painful muscles
Replies: 2
Views: 4855

painful muscles

I have been decreasing the dose of prednisolone from 20 and will be down to 5mg per day by Friday, obviously following neph's directions. For the past three weeks I have had severe pain at the top of my thigh so bad I can hardly walk. One leg got better almost straight away but the other got worse. ...
by marier
Tue Feb 26, 2013 10:31 pm
Forum: The KPG Forum
Topic: Mum recently started dialysis
Replies: 8
Views: 9355

Re: Mum recently started dialysis

From my very first session of HD, me and hemo hated each other. I had a first time reaction which landed me in hospital for a week. It was rare for me not to 'go off' during a hemo session. Nobody ever found out what was causing it in my case, but here are some of the things that were tried: Nothing...
by marier
Tue Feb 26, 2013 10:12 pm
Forum: The KPG Forum
Topic: Planning to start dialysis
Replies: 13
Views: 16598

Re: Planning to start dialysis

My creatinine was in the 600s with urea of 39.4 when I started dialysis. My efgr was 6%.
by marier
Sun Jan 13, 2013 6:21 pm
Forum: The KPG Forum
Topic: I finally got the call!
Replies: 13
Views: 17682

Re: I finally got the call!

Great news especially after waiting such a long time. I had my stent out on Friday, take a tramadol before you go, I did and I hardly felt it come out. Yes I think four week "downers' are rather common. You feel a bit guilty that you're not as grateful as you feel you should be and you are not ...
by marier
Sat Dec 29, 2012 9:25 am
Forum: The KPG Forum
Topic: tx wound not healing
Replies: 2
Views: 4527

Re: tx wound not healing

I think the initial problem was that it was leeking so much sirus fluid it couldn't heal. I think the other problem is that my tummy is still swollen a bit (wasn't flat before the op tho!) and when I bend it forces it open. I think i'll just have to be patient but keep an eye on it.
by marier
Fri Dec 28, 2012 10:18 pm
Forum: The KPG Forum
Topic: tx wound not healing
Replies: 2
Views: 4527

tx wound not healing

I'm almost five weeks post transplant and the top bit of my wound is gaping a bit. It's red at the edges and not gaping as in cravass but is definitely open. The nurse gave me new dressings, iodine strips, saline tubes for cleaning and gloves to keep things sterile (even gave me scissors with cleani...
by marier
Fri Dec 28, 2012 9:46 pm
Forum: The KPG Forum
Topic: waterproof covers for necklines
Replies: 9
Views: 14269

Re: waterproof covers for necklines

We were given a waterproof dressing that lasted a week of me showering every day. They were great as long as you didnt "soap' them too much which made them curl up at the edges. I dont use them any more but someone who dialyses at James Cook might know the name of them and you could always ask ...
by marier
Sat Dec 22, 2012 9:18 pm
Forum: The KPG Forum
Topic: Laughter is the best form of medicine...
Replies: 9
Views: 13138

Re: Laughter is the best form of medicine...

Says one snowman to another "can you smell carrots?"
by marier
Mon Dec 17, 2012 12:06 pm
Forum: The KPG Forum
Topic: problems catheterising
Replies: 2
Views: 3937

Re: problems catheterising

I think you need to speak to the professionals about this. As far as I am aware the catheter just needs to go far enough into the bladder to allow a flow, it should not need to go any further than that. :oops:
by marier
Fri Dec 14, 2012 3:45 pm
Forum: The KPG Forum
Topic: Personal health care budgets
Replies: 3
Views: 5046

Re: Personal health care budgets

Re: Personal health care budgets
This is the first I have heard of it. Do you have a link you can post?
by marier
Fri Dec 14, 2012 3:42 pm
Forum: The KPG Forum
Topic: owning a pet post transplant
Replies: 8
Views: 15689

Re: owning a pet post transplant

Last week they told me that dogs weere okay, just observe good hygiene practises and dont let them lick your face. Apparently they dont like you to have birds cos they carry more disease (eg pigeons etc).
by marier
Fri Dec 14, 2012 9:11 am
Forum: The KPG Forum
Topic: transplanted kidney function
Replies: 4
Views: 5418

transplanted kidney function

I attended my first out patients appointment yesterday after the tx and the bloods showed efgr of 40%. It will be three weeks tomorrow since the op. I know it will depend on everyone and their individual graft but I was wondering what function other people had achieved. Personally I'm chuffed to bit...
by marier
Tue Dec 11, 2012 2:42 pm
Forum: The KPG Forum
Topic: post tx drug effects
Replies: 6
Views: 7763

Re: post tx drug effects

Hi Andy, saw you on TV after your new tx the other week. Hardly recognised you without the hat! Congratulations by the way. My right leg is numb from just above the knee to the top of my thigh and also along my 'private' area. Its not painful but if I touch it it feels like pins and needles. I remem...
by marier
Tue Dec 11, 2012 10:08 am
Forum: The KPG Forum
Topic: post tx drug effects
Replies: 6
Views: 7763

Re: post tx drug effects

Thanks, nice to know its not permanent. Still, its early days and I've learned from other posts that recovery tends not to be as quick as we impatient people would wish. Hopefully once my blood stats are stable I'll feel better. Might sound silly but as I was only on the list for six days before get...